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lizzy

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CA
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ontario
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I posted a few times on this site with questions and concerns over my dh illness and it's been 3 years of back and forth w/o diagnosed, until now.
We have just been told that he has a brain injury caused by encephilitis that went undiagnosed at the time. He will not be able to improve or recover the damage that has been done but if he improves his excercise etc. his muscles may stay strong enough that he will not continue on a path to wheelchair and further.
I want to thank everyone who responded and posted to my threads and who help so many people on this site. I also want to say I have the deepest respect for all of the PALS and CALS that deal with the disease every day and wish you all the best. I have learned so much about ALS and will continue to support the cause in every way I can in the future.
Stay strong and don't give up the fight!
 

brendapals

Senior member
Joined
Jul 6, 2008
Messages
953
Reason
PALS
Diagnosis
06/2008
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any
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any
lizzy,
That's great that he doesn't have ALS! I will keep you both in my prayers for a long, happy life together,
wishing you the best,
brenda
 

BethU

Extremely helpful member
Joined
May 11, 2008
Messages
2,644
Reason
PALS
Diagnosis
05/2008
Country
US
State
California
City
Los Angeles
Lizzy, thank you for sharing this. I'm so glad it's not ALS, and that his condition will not deteriorate. I wish the both of you all the best.
 

Zaphoon

Extremely helpful member
Joined
Aug 2, 2008
Messages
2,855
Reason
DX UMND/PLS
Diagnosis
08/2011
Country
US
State
Missouri
City
Springfield
Lizzy,

I know what you and your husband must have gone through. My mother came down with the same brain malady when a staff infection went awry after orthoscopic knee surgery. My mother was out of her mind, in a place far away where she couldn't be reached. The doctors caught it in time and loaded my mom up with antibiotics. It brought her back.

It is good to know that your husband can maintain where he is with exercise and will not get any worse.

The very best of everything to you!

Zaphoon
 
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Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
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10/2003
Country
CA
State
On
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NW of Toronto
Good news Lizzy. Take care.

AL.
 

Micheline

Active member
Joined
Sep 23, 2008
Messages
80
Reason
PALS
Diagnosis
11/2008
Country
CA
State
British Columbia
City
Campbell River
Good news, take care of yourselves :smile:
 

crystalkk

Very helpful member
Joined
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Messages
1,210
Reason
Learn about ALS
Country
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State
pennsylvania
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Lizzy,

That's great news!
 
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