- Feb 3, 2010
My partner was diagnosed in Nov 2008, and he has declined so rapidly. I read on this forum that we are not alone in our experience, and this disease continues to shock me. As absolutely exhausting as this is for a CALS, I think the hardest and saddest part is watching someone you love deteriorate like this. How do other CALS cope? I have to really stay strong just so I can carve out time in the week to take care of myself. Then I feel guilty for asking, though I'm not sure why because no one seems to be accusing me of being lazy but me! The real challenge for me is that when I am completely exhausted after several days of taking care of my partner, I usually vent...and he's the one I vent to because he is right there and he's been my closest friend. Not really good, but it's so difficult because I am losing the best life partner one could have. I have to turn elsewhere for this venting, but it's so difficult to let go of him. Plus, even my spirituality has been tested. This seems like such a cruel disease - pretty hard not wondering "why?"