How to keep from being a blubbering idiot?

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How is ? doing..... I think is just a way for friends, family to ask when they don't know what to say or how to react to what is going on with us? I am forgiving of that.... Yes, what to say to that? Just fine? no, Great? NO we are ok... not really, awful? that would most likely scare them away? Anyway ,nice that they care enough to ask? Right? By the way how are all of you doing today? Hugs, linda
 
I have lately started answering.."progressing". Those who care enough to ask, know he's not gonna get better. I f they don't I make sure they do. It's easier than them asking if he's better. Somehow that hurts even more...

ALS SUCKS!
 
When people ask how my dad is, I just say "Hangin in there" thats usually enough, because if I get into details, I get to choked up.
Hugs, Kari
 
Both dad and I were always amazed at the amount of people who would ask, "so how is she going today" about mum - yeah, what do you say- She will never be the same as she was the day before? Dad always just told people"CRAP, But thanks for asking!" and they would look at him and he'd just tell them straight out, look she doesnt get any better, today is the best she's going to be. Dad is a pretty straight up person. With me, my generic answer was always -"Getting there' or "Doing well for what she is going through",as I too would blubber if I had to go into details, or if one of my kids were with me, and start talking about mum and know what she was going to miss out. Today is my eldest daughters 5th Birthday, and if someone had told me a few years back her Nanny Kerrie' wasn't going to be here to spoil her rotten, I would have laughed in their face! Today - I am the blubbering idiot as I know how much my Mum loved her Grandkids- and how proud she was the day my daughter was born, and she waiting in the waiting area for about 12 hours to be the first to see her. I think I'm allowed to cry a little though today!
 
"progressing" slowly also has been my answer but I wonder if that makes them think "better". I have been thinking that "declining slowly" is a better answer.
 
Yes! Declining slowly...and it depends on who asks as to how we all react!
 
My husband get so pissed off when I answer this question with "ok" or hanging in there, so I really do not know what to say. HUGS Lori
 
Well, Lori, what does he want you to say then?
 
When someone asks Beth how I am doing she is upbeat and tells them I am doing good, which I guess I am, when they ask me I type on my IPod "I can still swear" and then I drool on their shoes. No more questions!
 
Barry, You just crack me up! Thank you for makin me smile hun!
Hugs, Kari
 
Maybe we could just wear a chuakkboard around our neck that says' Not as good as I want to be""' and It will only get worse' Oh I truley appreciate their concern.... It is just now that I can't talk I just have to shrug my shoulders. Too much energy to try and explain anyway....
 
Took my son to the doctor this afternoon...Turns out he has severs disease, not real serious. He's a BIG boy and stuff ain't catching up with his growth. So we are leaving, waiting to get the order for radiology and the doc asks about my husband. I can't get the words out dammit! Then she says she won't ask me if it upsets me! WAAAAHHHHAAAA! BOOOOOOHOOOOOO! Blubbering ijit I am! Trying to talk while she is hugging me and then I suck it up and tell my son to get a tattoo or sticker! Hell, I need the damn tattoo or sticker! LOL

I usually don't lose it, but seems the stress is getting to me.

Doc called personally to tell me my son's hips are not affected and he wont have to go to an Ortho. He just needs PT on his ankles, as he is limping and can't run or walk without pain.

PICKLES! LOL

Just wanted to jump in here, I've been experiencing MAJOR migraines lately, doc says its because I cry too much! Guess I will have migraines indefinitely!
 
Dana,

Sorry! I don't know about the crying causing migraines. Do you take medicine for them? I know how debilitating they can be and pray I don't ever get another in my life.

Just looked that up about crying and migraines - so sorry it is a cause apparently!
 
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Oh yeah... I will back her up on crying-induced migraines. I will say that Sudafed (the real one that you have to get at the pharmacy counter, at least in California) helps. Also caffeine can help if you catch it just as you feel it coming on. Hang in there.
 
I know this sounds stupid, but I have been able to thwart of migraines and reduce them to just a headache by taking my wrists and turning them upside down under a sink with hot hot water. You want to make it so that the water hits the veins on the inside of your wrist, keep your hands relaxed and open and let the water run off your finger tips. I do this for about 5 minutes, til I almost prune, but it works for me! Gotta run and do it at the first sign the migraine is coming on though!
Hugs All!
 
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