How To Help

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sigmafloyd

Member
Joined
Jun 11, 2008
Messages
23
Reason
PALS
Country
US
State
NY
City
Astoria
I can't help but notice the amount of people posting who ultimately end up reassured that they don't have ALS. After Thursday, when I have my 2nd EMG in 3 months (upon my request) I hope to be one of them. I'm 26 and I've actually become quite close with another poster who is 25 who also thought he had ALS. We have been talking off the forums about how we can give back, how we can help. I know there are national organizations and such but for the people here who have spent so much time calming the fears of others, what can others do to help fight ALS and most of all to help you? We're looking ways to give back. Thanks!
 

patricia1

Very helpful member
Joined
Sep 18, 2006
Messages
1,149
Reason
PALS
Diagnosis
7/1999
Country
US
State
newjersey
City
lopatcong NJ
How nice of you guys.
Pat
 

fiddleplayer51

Distinguished member
Joined
Mar 24, 2008
Messages
337
Diagnosis
03/2008
Country
US
State
VA
City
Harrisonburg
Sigma,
I'm glad you and your friend seem to have been spared the diagnosed. Hopefully, this next EMG will confirm that you've got a clean bill of health.

As for ways to give back, I think finding out about helping others in your area with chores, sitting, doing errands, etc. is the best way to give back. Make yourselves known and available wherever you live to individuals and families who are struggling with this disease. Maybe locating a local ALS support group and talking with the person in charge might get you into the circle. Assist with fundraisers or have one yourselves. Get the word out about ALS so people are more aware of it; educate people.
Thanks for your concern and desire to help with the cause. I wish you well.
Jane
 
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