How to do things when legs quit working

Status
Not open for further replies.

CBowman

Active member
Joined
Jan 23, 2007
Messages
57
Reason
Learn about ALS
Country
US
State
Florida
City
Tampa
When you completly lose your legs, how do you do things like go to the bathroom and get into bed. My left leg is pretty bad and it (als) is working on my right leg now. I need to start thinking ahead. I am having difficulty now getting up from the toilet and low chairs. I can still use a walker but can't go far. Any advice is welcome.

Thanks :mrgreen:
Chad
 

Marianne

New member
Joined
Feb 11, 2006
Messages
6
Stan's conditions are a little worse than yours. He is much weaker now and needs assistance when moving from chair to bed or cammode. Up to now he has a walker in front of him for helping him to pull himself up. I leaverage under his arm (arm pit with my arm and assist with pulling him up . I have also used a safety belt to assist with and secure him from falling. He then swivels to the location and is assisted with lowering. He now always uses a motorized recliner chair, hospital bed in a high position, raised toilet seat so that he does not have to work so hard to stand up and go down too far. I have just ordered a transfer board that can be used a bridge between the two seats. He then can shimmy over the board rather than pull himself up as he weakens more.

We also have purchased a sling lift. In the earlier days when he would fall I was too weak to pull 235 pounds 6 ft. man to his feet. So we would use this lift to pull him up to his feet. We will need to use this in the future to move him from one location to another when he does not have the leg and arm strength to assist.

I aslo installed a sit-n-lift for our GMC Montana van so he can shimmy from the wheel chair over to the car seat and then lifted into the van sitting. It works very well!

Marianne
 

AlmasDaddy

Active member
Joined
Dec 29, 2006
Messages
31
Reason
PALS
Country
US
State
CA
City
Ca
Chad

http://www.alsa.org/resources/manuals.cfm
The manuals provided by the ALS Association are good resource to have for you and your family as the disease progresses, it will give you a step-by-step idea of what to be ready for.
You might want to also look up, support groups, through the ALS Association and find out which ones are in your area. Michael
 

CBowman

Active member
Joined
Jan 23, 2007
Messages
57
Reason
Learn about ALS
Country
US
State
Florida
City
Tampa
Thanks for the advice you two,

I am still ok now, but trying to prep for the future of this runaway ALS train. :mrgreen:
 

CBowman

Active member
Joined
Jan 23, 2007
Messages
57
Reason
Learn about ALS
Country
US
State
Florida
City
Tampa
What kind of a leg brace? I have a foot drop brace, but my hambstring, quad, and hip are pretty weak on my left leg. My right leg is still Ok but has some weakness.

I was born in Michigan (St. Clair Shores). Where are you from in the UP?
 

hopingforcure

Very helpful member
Joined
Feb 14, 2008
Messages
1,420
Diagnosis
09/2007
Country
US
State
USA
City
Any
I often think of Chad, I am sorry that you have had this loss and I am glad you stopped by you are in my thoughts.
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Hi Brenda. Glad to see you checked in with us. Chad made a bunch of friends here in his short time but his spirit is alive when people use the search and bring up his old posts and his advice and attitude help them.

AL.
 

Willow

Distinguished member
Joined
Dec 28, 2006
Messages
102
Reason
DX MND
Diagnosis
04/2012
Country
CA
State
East Coast
City
NA
My heart skipped a beat when I saw his post. There was another one not too long ago also so I have no doubt he is still helping others just like AL said....so sorry for your loss Brenda.
 

contempoz

New member
Joined
Feb 7, 2008
Messages
6
Reason
PALS
Diagnosis
10/2007
Country
US
State
Florida
City
Fort Myers
to others in the same situation. The Standers Security Pole
and Curve Grab Bar is a great piece of equipment.
Very versatile and inexpensive. I own two and could not get by
without them. Check it out online.

Rich
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
For those not aware, Chad passed away quite some time ago at the young age of 34 if my memory is correct.

AL.
 

olly

Extremely helpful member
Joined
Jan 10, 2008
Messages
2,732
Reason
PALS
Diagnosis
11/2007
Country
uk
State
uk
City
uk
i remember chad,may he rest in peace.
brenda,you and your family are in my thoughts.
godbless.
 
Status
Not open for further replies.
Top