WorryingInOR
Member
- Joined
- Jan 27, 2021
- Messages
- 10
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- OR
- City
- Portland
Thank you all for your time and attention. For the last 3 months I have been experiencing a series of symptoms that have me greatly concerned:
I'm so worried that this is beginning stage ALS. All of this happened within the past few months and feels so sudden. The referral to the neuro has me so scared. How much more will I continue to decline until the appointment? The hand and mouth issues make me worried I have rapid bulbar onset. I'm 34.
- Frequent widespread muscle twitching starting in legs then moving all around my body (arms, butt, neck, torso). These are most noticeable when at rest and especially at night.
- Atrophy in my dominant hand (pic attached). Hand pain/weakness as well when gripping, typing, etc and occasional cramping. Pain/weakness sometimes radiates up my forearm and into shoulder.
- Excessive saliva - no drooling yet but I have to spit more often to clear it out of my mouth.
- Tongue quivering and fasciculations. I don't see them at rest but when I stick my tongue out and contract the muscle they pop like crazy.
- My cheeks and lips tremble if I hold my mouth open for too long.
- Waking up short of breath multiple times a night. Seems worse when trying to sleep on my back.
I'm so worried that this is beginning stage ALS. All of this happened within the past few months and feels so sudden. The referral to the neuro has me so scared. How much more will I continue to decline until the appointment? The hand and mouth issues make me worried I have rapid bulbar onset. I'm 34.