how old

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Hello

Hello

My friend Gail was diagnosed at the age of 41 in March 06, symptoms started in Jan 06.

Barbie
 
My mom was diagnosed last year at the age of 81. She is now 82, but first started with symptoms at 79.
 
My husband was diagnosed in January of '06, but we believe he was having symptoms for about a year before that. He's at about 35% lung capacity and in a wheelchair full time. He has some speech difficulties, but can still eat normally, He had a feeding tube put in for liquids. God Bless you all, and never give up...God Bless, Teej
 
Hi Iluvmysoldier502 and everyone on the thread

My husband was 56 when he started having symptoms, around June 2005, was Dx on October same yr.

He was a duster pilot applying pesticides for 23 yrs.

Paty
Husband's caregiver
Baja California, Mexico
 
Diagnosed May 2006

Yes, I too hope we will continue to get responses to this thread. My husband was diagnosed with limb onset May 2006 at the age of 50. We think his symptoms could have started as far back as 4-5 years with severe muscle cramping occuring throughout his body, but most noticabley, limb symptoms (left ankle) occurring later part of 2005. At this time he is walking w/cane.....experiencing same losses on right side and progressively growing weaker in hips on down. My sincere best to all and may we continue to help and encourage each other. Love Boots.
 
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My friend was diagnosed about three years ago, and knew something was wrong when he started tripping over the carpet. He's now 55 years old, and prior to becoming ill with ALS was very active and an outdoor enthusiast. I met him almost a year ago through volunteering with hospice, and at the time he could no longer walk but still had some strength in his legs. He could not move his arms, but had a little mobility yet in his fingers. He was still able to speak and swallow without any problems. He was pain-free up until a few months ago. Around September his diaphragm started becoming paralyzed, and over the past couple months, he has deteriorated quickly. It's very difficult to understand what he is trying to say, and it is becoming increasingly difficult for him to swallow. He's now in a very nice in-patient hospice facility and is getting excellent care. I thought I had an idea of how this disease progressed, until I started reading all the stories here and came to learn that there isn't a lot typical about how ALS progresses. So, now I don't know how much longer he has to live, but I can't imagine it could be very much longer. His name is Mike; I'd really appreciate it if you would keep him in your prayers. Thank you. Sharon.
 
My symtoms began in early 2003 and was finally diagnosed in Jan. of 2005. I was 56 at time of diagnoses. I had leg onset and am now using a wheelchair for most everything. My arms and hands are becoming increasingly weaker. I thankfully have no respritory issues. Best wishes to all.
 
Bens symptoms started in October 2005 He was told he needed spinal surgery, he had the surgery January 2006 He was miss diagnosed
June 2006 1st diagnosed
September 2006 official diagnoses from Dr. Lange( ALS center New York)
Died December 6, 2006.
You dont always have the 3-5 years spend your time wisely.


Donna
Barnegat, New Jersey
 
Age of Diagnosis

My Dad is 77 years old. He started having falls about 6 - 8 months prior to this. (He was still farming full time at this point.) He had other symptoms earlier such as weight loss, etc. but everyone thought it was the stress due to my mother being ill. Mom passed away in November of 2005. Dad was then treated for depression and doctors assumed the other symptoms were stress related. On June 6, 2006 Dad had his first neurologist appointment. He was examined and the neurologist diagnosed him without any further testing. I took Dad to see a specialist on August 2, 2006. He had the EMG, etc. and this neurologist confirmed the diagnosis. At present Dad is unable to use his legs and his left arm. He has difficulty with phlegm and excess saliva. These past few weeks its hard to understand his speech and he is very thin.
 
I was 59 when dig. had sytoms about a year some systoms
2 years are more. I have bulbar als which is speach and breathing
at this time ,dig in April-06,had the emontional part for years.

Davis07
 
My mom was diagnosed with ALS in Sept 06, one month shy of 61. She started having symptoms in May 06.
 
MY husband got diagnosed at 64 years. He was a high energy Type A personality Had many professions but primarily a college professor turned realtor. We just finished a scrap book for his kids & it took two months just to organize it. He marched in Selma during the civil rights, he was an activist protesting Vietnam, worked in a mental hospital full time whille attending college full time, volunter fireman, taught criminology and social sciences, became a policeman so he could better teach and understand the criminal system, co-founded a community college etc. He has so many awards and recommendations and it breaks my heart how this disease is ravishing him. The scrap book brought back so many memories and that was good but also depressed him because he never thought he would be in this situation. He has such an energy and drive and I am counting on that drive to get us thru this. We live in Bend, Oregon. So that is a summary of our story. It's been five months now.
Thanks,
Phyllis
 
Phyllis, I just wanted to say that your husband sounds like a most incredible man. He has given so very much throughout his life; God bless him. ALS is the cruelest disease I have ever witnessed, and it just makes me so angry that so many amazing and wonderful people are afflicted. Sharon
 
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