Hello all.
My husband was diagnosed last Jan. and he was 45 - now 46 turning 47. I believe - looking back - that his symptoms started at least 2, if not 3, years prior, and it took 1 1/2 years to get a diagnosis. He was very fit, active - in great shape. Originally it started with his left foot - just didn't feel right when he ran and played hockey then started to drag, then he had dropped foot. Then it progressed to his left leg, right leg, and is now affecting his hands, arms, his ability to clear his throat (saliva), can't cough, etc. He has been using a bipap machine at night for a year and a half, but he gets extremely fatigued, can still walk a little (very little!) with a walker - mostly just to the bathroom. Thank goodness he can still talk and eat!
This disease is so horrible! To watch a man who was so alive slowly fade away is awful! My husband has also been suffering from depression about the disease for quite some time. I believe he has thoughts of suicide very often, but cares so much for our kids that I don't think he'd do it ( at least I pray he won't!).
Lately, he's been experiencing pain in his back. We have a special easy chair for him - has heat, vibrater/massage, and raises and lowers. Does anyone have any suggestions about wht we could do about his pain?
This thread is great and I hope it continues.
Beaner