how old

[emjoi]

My dad was 62 when his symptoms started.
Diagnosed at 63.
And died at the age of 65.

Yes, the disease, to put it bluntly, sucks.

 

[jhviv]

my partner was 39 when diagnosed. he's 41 now.

 

[Earth Mama]

I developed symptoms five months after I had my baby, I was 35. I was diagnosed with bulbar onset ALS last fall, at 36. I am 37 now, have hoarse or slurred speech, and muscle wasting in my hands and arms, my legs are beginning to be affected. I am still able to do all the care for my baby.

 

[zac111]

emg anfd nerve study

can anyone help the doc done my test and said to of my nerves were slol i think on his papper it had a 37 and a 36 does anyone know what this means? he said it wasnt suggestive of als,but still have twithing of muscles and sway a little when standing with a lump in throat when i swallow along with pain in legs any help would be great.

 

[zac111]

also he said he thinks its a mild nerapothy

 

[misscasey]

diagnosis

My mom had all the beginning symptons of ALS when she was 44, and was diagnosed just shy of her 47th birthday. It started with trouble walking, and in May of 2005 she moved to those double cane devices, and then later that year she switched to an electric wheelchair. ALS was thrown out onto the table in January of 2006, but we were all determined that that wasn't it. I had suspected for a little while that ALS was the disease, but it really upset my little brother when our father told us a couple nights ago that it was, in fact, ALS.

I'm just hoping for a cure so we can all go back to leading a relatively normal life. :neutral:

 

[Al]

Hi Misscasey. Sorry about your mom's diagnosis. It would appear from what you have told us that it is not moving fast but I am sure it seems to be to the family. If you need a place for questions ,advice or just a place to vent you have found the right place.
AL.

 

[scuba114]

This is my first post. My wife of 16 years was diagnosed with ALS on December 11, 2006. She is 36 years old and up till now very healthy. We have 2 children ages 10 and 3.

 

[scuba114]

I made a mistake in the years married. I fixed it though.

 

[sharonm25]

Age

Hi Everyone,
My Mom began having problems in March 2006. She was stumbling and having problems keeping her balance. She was 72 years old at the time. After extensive testing done by her local GP and neurologist she was referred to the Mayo Clinic in July 06 and diagnosed with early onset of ALS. She passed away on Dec 10 2006 at the age of 73.

Sharon

 

[Al]

Hello Sharon. I looked back through your posts and didn't see any other mention of your mom's passing before today. I am sorry for your loss but thank you for coming back to let us know.
AL.

 

[JACKIEMAX]

keeping this thread going

3/6/07
my husband just turned 71, and was the essence of good health... played racquet ball 35 years and in great shape. was misdiagnosed last august and had back surgery for spinal stenosis, which of course did nothing to help his problem with walking.

after two emg's, seeing a pulmonary specialist, an ent specialist, and finally an als specialist, he was diagnosed two months ago with als.

he first noticed weakness in his right hand, then his left leg started dragging some, then he began walking awkwardly, stilted backwards a little.

now he is on a bipap at night and gets fatigued just walking from room to room. they ahave ordered a wheelchair, motorized, for him, but it has not come yet.

he can drive a car, but can't walk when he gets there. he can still talk, swallow, does not drool, but his breathing is not good at all.

this is a monster disease.

please everyone, keep posting and keep sharing.

jackie

 

[midwestgirl]

My mother was 75 when diagnosed, probably had symptoms for at least 2 years previously. I, too, have to wonder why a person comes down with ALS. I know the researchers have not, and can not, say what triggers ALS - seems like many different factors. My mother was in a car accident 6 years ago, and hurt her left knee, which is where the first symptoms (left leg) reared its ugly head. Makes me wonder if somehow that didn't trigger something.

 

[patricia1]

It makes you wonder if the doctors really know much and what is really the causes and if they really know if it is als or is there something else out there and they are blaming als on every neuro they dont know I have bulbar onset and I am here 8 years with only speech and arms involved Which goes agains what the outcome of bulbar onset means So I really am losing faith in the doctors out ther They need to sharpen their pencils Pat

 

[patricia1]

What happened I know I was told I repeat myself but this is rediculous Ha Pat