Age, Family and Symptoms
My brother Timothy is 45. I am 43. He had symptoms for 7 years before ALS was suspected 3 years ago. DX 2 years ago=10 years. No Familial History. I started having the same symptoms (he did before Dx) in March 06. the Neuro. said Peripheral Neuropathy and BFS. I was sent to another Specialist for a Second Opinion, I went last friday. I go Thursday for another EMG and NCV. I haven't had one since Aug. 06. This Doc. is leaning toward the same thing PN and BFS. I hope it is what they are saying and is coincidental. I woke up last night with severe/ cramps in my leg muscles and have constant twitching. I do have the PN symptoms I am going to give this Doc. another ear full when I see him thursday.
Also, I E-Mailed a Doctor at the University of Pittsburgh that does ALS Research. (Timothy is going to be a Tissue Bank Donor-at the end). I asked how likely it would be for a sibling to get ALS. He said with no Familial history. It would be very unlikely but, not impossible.
I just thought I would share that!
Lorie