AuntSilly
New member
- Joined
- Jun 14, 2014
- Messages
- 0
- Reason
- CALS
- Country
- US
- State
- VA
- City
- Stafford
Been to multiple specialists, multiple pokes, even Mayo...and more to come over the next months as I wait for the "appropriate" 48 or 60 months necessary to "achieve" the diagnosis. Still no one wants to say ALS/PLS; clearly, motor neuron symptoms and clinical signs. Only PM&R specialist has courage to state it's upper motor neuron. Although the second opinion neurosurgeon said he "would bet his house it wasn't the spine" and recommended neuromuscular specialist who 18 months later has yet to see me as patient.I thank God everyday for my pelvic floor physical therapist and my PM&R specialists who are walking the walk and have the courage to step forward with me. Baclofen, valium and soon botox for spasticity. My primary care physician is tremendous support because she actually is KIND.
If I told you what my profession is there would be an incredible response to this post. I saw a neurologist this week who actually shrugged her shoulders. What! She needs to get out of medicine NOW. There is more right about each one of us then what's wrong with us. I wish most of these folks would get out of medicine. It would be a better world.
Find a primary care manager who cares and hey, even "loves you" for the beautiful child of God you are, not a "case."
Oh, they say the last to go is cognitive or executive function. The last for me will be my sense of humor. I am made in the image of God and he laughs the loudest.
I am going to continuing caring each day for the folks before me for as long as I my hokey pokey cooperates. I just don't think specialists are worth the diplomas they plaster on their exam and office room walls...and certainly not worth the money.
If I told you what my profession is there would be an incredible response to this post. I saw a neurologist this week who actually shrugged her shoulders. What! She needs to get out of medicine NOW. There is more right about each one of us then what's wrong with us. I wish most of these folks would get out of medicine. It would be a better world.
Find a primary care manager who cares and hey, even "loves you" for the beautiful child of God you are, not a "case."
Oh, they say the last to go is cognitive or executive function. The last for me will be my sense of humor. I am made in the image of God and he laughs the loudest.
I am going to continuing caring each day for the folks before me for as long as I my hokey pokey cooperates. I just don't think specialists are worth the diplomas they plaster on their exam and office room walls...and certainly not worth the money.