Eponine
Member
- Joined
- Jul 20, 2006
- Messages
- 18
- Reason
- CALS
- Country
- US
- State
- MA
- City
- Springfield
Hello,
My dad was diagnosed with ALS in July. It's been a rough couple of months. He has gone downhill quickly. He is in a wheelchair more and more (he is going for a wheelchair assessment at the end of the month for an electric one)
We went to the Lahey Clinic and they reconfirmed the diagnosed. My dad's spirits are ok, on and off. Emotionally and mentally it has been exhausting for everyone involved.
My dad has decided not to get a feeding tube or a bipap machine to help him. Upon his wishes, we have canx several dr appiontments.
Since the beginning of the year, he has lost the mobility in his left arm, his right arm has very limited mobility and his legs are almost gone.
At this stage and the quick degression, and with no help later down the line from a feeding tube or bipap, how long could he go on?
I would guess that if those who don't have a bipap machine generally die in their sleep?
His breathing is ok and he hasn't starting choking on foods or anything like that yet. I guess the breathing worries me, especially considering in December we were all at Disney World enjoying a family vacation.
Thanks for your help!
My dad was diagnosed with ALS in July. It's been a rough couple of months. He has gone downhill quickly. He is in a wheelchair more and more (he is going for a wheelchair assessment at the end of the month for an electric one)
We went to the Lahey Clinic and they reconfirmed the diagnosed. My dad's spirits are ok, on and off. Emotionally and mentally it has been exhausting for everyone involved.
My dad has decided not to get a feeding tube or a bipap machine to help him. Upon his wishes, we have canx several dr appiontments.
Since the beginning of the year, he has lost the mobility in his left arm, his right arm has very limited mobility and his legs are almost gone.
At this stage and the quick degression, and with no help later down the line from a feeding tube or bipap, how long could he go on?
I would guess that if those who don't have a bipap machine generally die in their sleep?
His breathing is ok and he hasn't starting choking on foods or anything like that yet. I guess the breathing worries me, especially considering in December we were all at Disney World enjoying a family vacation.
Thanks for your help!