How Long Has Everyone Had Als ?

HOW LONG HAS EVERY ONE HAD ALS ????


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my dad had it for almost 9 years....
 
my daughter, Marcie has been DX with ALS for 14 1/2 years but symptoms started 2 years before that in 1992 for a total of 16 1/2 years

Linda
CALS to Marcie
DX with ALS in 1994 when she was 23
PEG in '04
Vented in '06 on her 36th. Birthday day
uses ERICA to communicate

you can read about her here in the May '08 listing :grin:

http://linda-frances.blogspot.com/
 
Our family members have died within 1 year of onset. FALS.
 
I was diagnosed in 1991 I cant walk any more I have not been eating for two years> I don't have much hand or arm use just anoth to use my chair.Istill breve on my own.
GOD BLESS ALL>
John
 
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