R ronkon New member Joined Sep 28, 2006 Messages 1 Reason PALS Country US State ny City ronkonkoma Jul 29, 2007 #16 my dad had it for almost 9 years....
T TanDaMay New member Joined Oct 18, 2008 Messages 7 Reason CALS Diagnosis 01/1994 Country US State Tx City Arlington Oct 23, 2008 #17 my daughter, Marcie has been DX with ALS for 14 1/2 years but symptoms started 2 years before that in 1992 for a total of 16 1/2 years Linda CALS to Marcie DX with ALS in 1994 when she was 23 PEG in '04 Vented in '06 on her 36th. Birthday day uses ERICA to communicate you can read about her here in the May '08 listing :grin: http://linda-frances.blogspot.com/
my daughter, Marcie has been DX with ALS for 14 1/2 years but symptoms started 2 years before that in 1992 for a total of 16 1/2 years Linda CALS to Marcie DX with ALS in 1994 when she was 23 PEG in '04 Vented in '06 on her 36th. Birthday day uses ERICA to communicate you can read about her here in the May '08 listing :grin: http://linda-frances.blogspot.com/
J jcarnahan Member Joined Sep 11, 2007 Messages 10 Reason PALS Country US State FL City Sebring Oct 24, 2008 #18 Our family members have died within 1 year of onset. FALS.
jonsjr40 Active member Joined Oct 4, 2008 Messages 63 Reason PALS Diagnosis 02/1991 Country US State VA City castleton Oct 25, 2008 #19 I was diagnosed in 1991 I cant walk any more I have not been eating for two years> I don't have much hand or arm use just anoth to use my chair.Istill breve on my own. GOD BLESS ALL> John
I was diagnosed in 1991 I cant walk any more I have not been eating for two years> I don't have much hand or arm use just anoth to use my chair.Istill breve on my own. GOD BLESS ALL> John