- May 11, 2009
- Learn about ALS
Hi, I've been seeing a neurologist for initially a weak left hand/arm then it progressed to weak foot and leg and now it's been close to two years. At first when I initially showed her my tremor (pressing a finger against a wall) she told me after a clean emg that I had tremors. Next scheduled visit she ran a brain mri (clean) but I showed her my new constant big toe tremor and told her of my numbness on the side of my calf. I have, and continue to have all over body constant twitching and occaional buzzing and occasional finger/toe twiches. I also have SLIGHT numbess on my left hand and left outer calf side. She didn't seem too concerned about my toe twitching but told me to follow up. Next follow up visit we did a urine catch for heavy metals (normal) and on the return visit (now going on two years she noticed hyper reflexes, said I'm dragging my foot (I may or not be my walk has always been off due to scoliosis in my opinion) and that I've progressed. This time she seemed like she woke up and noticed something. She kept telling me (as if I didn't know) "oh, you've progressed!" so in light of that she said if the spinal mri comes back fine she would refer me to Madison WI. I am VERY frustrated. EVERY visit I asked her what she thought it was. Every visit she would say she doesn't like to "generalize". I pointedly asked her, MS? ALS? Anything Sinister? and she said no. This last time when I was going to get her to at least narrow it down and I pressed her she said it may be a sclerosis. I have my referral and maybe Madison will be better but I don't think my situation seems complicated. Any advise as to what this may be? Anyone? I'm a 43 y/o female. Any feedback would be appreciated. Also, (and I may be venting) when I called Madison the receptionist said "oh your being referred for the second opinion". I lost it..I asked her what the first opinion was! Do doctors withhold information? Is that legal? Anyhow the receptionist said it was for left hand paraplegia (I know I spelled it wrong) I also have muscle soreness. Mostly lately my left glute but sometimes my whole leg. thanks!