how I feel morning vs night

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Nina Lamanno-Auker

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Jan 28, 2009
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PALS
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12/2008
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altamonte Springs
I want to know if anyone seems to feel better as the day goes on. when I work I start outok, recently my legs feel tired, by 1 I feel somewhat tired but then by2 or 3 Ifeel great my legs arent tired and my arms feel better. I am trying to figure out what my body is telling me. I am a nurse and work 12 hour shifts. I guess I'm trying to see if I am causing harm to myself or not.
 

brendapals

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06/2008
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Nina-

From what I have learned over the last 8 months, you need to "pace" yourself, or you will wear yourself out! Some I learned from trial and error, and I also listened to a lot of advice on this forum, plus the patient advocate from the ALS Assn.

I think that we, as nurses, tend to think we can keep working, no matter what! Well, I'm slowly, but surely, learning to enjoy time with my family and just general "living" more than working. Yes, I love my job, the people I work with, the drs I work for, but my family comes first. I'm in the process of dropping down to only 2 days a week so that I can qualify for disability. There's much more on that adventure under the disability thread.

I remember the 12hr shifts, both in the ER, and later in hospital and long term care settings. My hubby used to tell me it was nice to have a few more days off, but damn, when I worked 3 12's in a row, it took a whole day to recover!

I've heard that the more you push yourself with ALS, the more fatigue you will have. Your body will talk to you-it's just so hard to listen!:)

Hope this helps a little, I'm sure someone else will chime in-
take good care,
-b
 

Patsy

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Kapuskasing
Nina.
you have ALS! You're a nurse and still working! Retire and enjoy life while you still can! From one nurse who knows.

Patsy
 

brendapals

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Messages
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PALS
Diagnosis
06/2008
Country
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Patsy-
Good to see you agree-it's not worth it to be completely worn out!:smile:

Nina-let us know how you're doing,
take care,
-b
 
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