Suzannah
Distinguished member
- Joined
- Mar 19, 2014
- Messages
- 132
- Reason
- DX MND
- Diagnosis
- 08/2014
- Country
- Uni
- State
- TEXAS
- City
- Deep in the Heart of
Hi all,
I have read this board everyday for four years, and there is something I'm still unclear on. I was hoping someone might be able to explain it to me here (for those of you who don't know me, I usually post on the PLS board. I have a UMN diagnosis of hereditary spastic paraplegia that may or may not be true)
As my title suggests, I'm not clear how UMN and LMN symptoms exist simultaneously. For instance, if someone has UMN related spasticity, will that symptom eventually be "overwritten" (for lack of a better term) by later LMN damage or by the dying of of the UMN? Or are some limbs affected one way and the others another way? I'm not quite sure how to word what I'm trying to ask.
So I guess I should ask my real question, which is this. I was diagnosed due to extremely high tone in my legs and global hyperreflexes. In the last year or so, my hand started to atrophy between my thumb and first finger and on the inside of my thumb. My grip strength is very poor and now my hand has started twitching in those muscles. I've read enough here to know that is worrisome. Fairly recently, the tone in my legs had started to decrease somewhat. I'm unclear as to whether a decrease in spasticy is yay a good thing that points away from a mnd or a bad thing that points towards.
I do have a research appt follow-up on Thurs for a mnd study, so I'll be able to discuss with the doc then. But I was hoping someone could shed some light on the meantime. (And mods, feel free to move this post of needed, but I didn't feel it was exactly a dihals type post)
Sincerely,
Suzannah
I have read this board everyday for four years, and there is something I'm still unclear on. I was hoping someone might be able to explain it to me here (for those of you who don't know me, I usually post on the PLS board. I have a UMN diagnosis of hereditary spastic paraplegia that may or may not be true)
As my title suggests, I'm not clear how UMN and LMN symptoms exist simultaneously. For instance, if someone has UMN related spasticity, will that symptom eventually be "overwritten" (for lack of a better term) by later LMN damage or by the dying of of the UMN? Or are some limbs affected one way and the others another way? I'm not quite sure how to word what I'm trying to ask.
So I guess I should ask my real question, which is this. I was diagnosed due to extremely high tone in my legs and global hyperreflexes. In the last year or so, my hand started to atrophy between my thumb and first finger and on the inside of my thumb. My grip strength is very poor and now my hand has started twitching in those muscles. I've read enough here to know that is worrisome. Fairly recently, the tone in my legs had started to decrease somewhat. I'm unclear as to whether a decrease in spasticy is yay a good thing that points away from a mnd or a bad thing that points towards.
I do have a research appt follow-up on Thurs for a mnd study, so I'll be able to discuss with the doc then. But I was hoping someone could shed some light on the meantime. (And mods, feel free to move this post of needed, but I didn't feel it was exactly a dihals type post)
Sincerely,
Suzannah