Thanks for the information! I might be jumping the gun on an ALS clinic or a MDA - I have not even had my first EMG yet. My thoughts have been racing and very scattered since my doctors visit last week....panic is a good word!
I feel foolish worrying about money at such a time, but I can't help it. My husband and I just baught a house and frankly have been living beyond our means. If my diagnosis is something that limits my ability to work, we could be in big trouble.
I would feel a lot better with some things settled, like a will, an advance health directive, life insurance and long-term disability insurance. My goal this week is to have many of these researched if not in place. Hopefully I will feel better with these out of the way; I hope it also helps keep my mind busy enough that I don't monitor my every shake and twitch!
Thanks so much to everyone!
Pythia