Mattydejr
New member
- Joined
- Feb 15, 2012
- Messages
- 5
- Reason
- CALS
- Country
- US
- State
- Texas
- City
- League City
Let me first say, when she was diagnosed I was dedicated to try to make our/her last years as comfortable and apply as possible. As the two years have passed it has been harder to stay focused on that initial plan. Do any of you have the issue of trying to plan anything? Maybe I am too concerned with making everything right. She deserves that, but I need her to help me. It is so hard to be a caregiver/husband, or is it? Maybe it's me! There is no manual for this stuff. Yet I feel I am certainly not following it. I don't want to do support groups or counseling to whine about a situation that has no fix or real solution. As she says , "suck it up, buttercup" that is virtually all there is for those of us who may share my frustrations. I hate to sound selfish but the bottom line is , this disease is devastating it knocks you on your ass and doesn't offer a hand up. It does affect all of us equally in the sense, that they are helpless to help us help them and we have the biliary to help them and yet are unable. Lost!