Hellybelly
New member
- Joined
- Nov 2, 2019
- Messages
- 3
- Reason
- Loved one DX
- Diagnosis
- 03/2019
- Country
- UK
- State
- NY
- City
- Hertfordshire
Hi all. I’m a care giver to my hubby. He is 54 and has had symptoms from jan 18 but wasn’t diagnosed till March 2019. He has gone down hill fast since March as he was still walking with a stick. Now he can’t do anything for himself. He can’t blow his nose, wipe his eyes, scratch himself, feed his self. The list goes on. Does any one else feel they are grieving the loss of the person who they were? It’s a awful disease; it takes everything from them . And for the care giver as it’s 24 /7. You no longer sleep as they wake all night with spasms. You can’t go and do the things you did before. Your whole life has changed. I not only grieve losing my hubby as he was, I grieve for my life back. That might sound selfish but I’m tired and exhausted. It’s awful. I hope other care givers understand where I’m coming from and it’s not just me. X
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