Not proof positive, is it?
Hi. I am a noob.
This video is not totally indicative of ALS is it? I joined the group here because I can't seem to smile anymore - and not for lack of happiness. I feel like all the muscles in my face are so weak. When I try to smile my cheeks twitch. When I open my mouth like the gentleman in this video, I have exact results. My tongue is constantly bobbing around, my lips and facial muscles are quivering (cheeks, chin, lips and even eyelids) and I can only hold the pose for a minute at most when I must stop and rest... and literally feel physically drained all over.
I don't believe I have ALS. I was tested about 5 years ago with the nerve conduction and it showed nothing but some elbow issues. (Symptoms are progressively worse now than they were then - but doctors made me feel so stupid - as if I was making something up, that I decided I would rather live with symptoms than be humiliated like that again.)
I had MRI and it was clean. Actually, I was thinking more like Parkinson's because of the constant twitching/jumping of my muscles. Besides, I am a 40 YO FEM. Isn't ALS mostly diagnosed in men over 50? I have no family history of it to my knowledge.
I went to PCP Monday and will have results this Monday on regular blood work. I was thinking thyroid - doc is thinking autoimmune. Either way - this video frightened me a little and I just wanted to know if this is proof positive of ALS or if there are other things to cause my face to be so weak?
Other symptoms I exhibit are extreme fatigue, overall weakness, shortness of breath (even when getting up from sitting/prone position), incredible pressure in ears with chronic tinnitus that is making me near crazy, hypotension, ice cold hands and feet, non-existent sex drive, sore shoulder bones (to the touch), sore ribs (to the touch), lack of desire to do anything fun - nothing sounds fun but I am NOT in depression, though I have been treated for depression in the past.
I suffered from a bout of mononucleosis (which I don't understand how I could have got) in 2001. In 1992 I was hospitalized for two weeks with high fever (103) something the doctors never could diagnos and they removed my appendix - but then thought salmonella but tests were negative and positive so they never knew for sure.
These are the only two illnesses I have ever had.
Does any of this sound like something you may be familiar with or do you have any suggestions as to where to look for answers or how to approach my doctor with this without sounding like a complaining bafoon?