mommasgirl
New member
- Joined
- Jul 17, 2011
- Messages
- 9
- Reason
- Loved one DX
- Country
- US
- State
- Ca
- City
- Roseville
If this is not the correct place for this, I apologize.
Since my Moms diagnosis in July I havent had the heart to post, infact I stayed away for a while because I had a difficult time dealing with it.
I am sure many of you can relate and I really dont know what I am looking for at this point, maybe just to vent?
My Mom lives in Washington state and I live in California. She is my best friend and it tears me apart inside knowing what she is going through and I cant be there for her. She has what I understand is bulbar onset. She has completely lost speech and had a feeding tube placed last week. She is already starting to get week and cant walk long distances or lift.
She sends me text messages everyday with new things and I do my best to be encouraging, give good advise (thanks to this wonderful forum's search function) and talk about things not ALS related. I am sending her my Ipad tomorrow and purchasing the proloquo2go for her (Thanks to my wonderfully supportive husband).
My fear is that by the time I get back to see her in person it will be too late. I want so badly to pick up the phone and hear her voice on the other end. I have so much to share with her. Its not as easy as I thought it would be becoming the parent to my mother.
Is there anyone here that has dealt with the same situation? How do you help from so far away?
You all are so strong and my prayers go out to all of you.
You never know how strong you are, until being strong is the only choice you have.
Since my Moms diagnosis in July I havent had the heart to post, infact I stayed away for a while because I had a difficult time dealing with it.
I am sure many of you can relate and I really dont know what I am looking for at this point, maybe just to vent?
My Mom lives in Washington state and I live in California. She is my best friend and it tears me apart inside knowing what she is going through and I cant be there for her. She has what I understand is bulbar onset. She has completely lost speech and had a feeding tube placed last week. She is already starting to get week and cant walk long distances or lift.
She sends me text messages everyday with new things and I do my best to be encouraging, give good advise (thanks to this wonderful forum's search function) and talk about things not ALS related. I am sending her my Ipad tomorrow and purchasing the proloquo2go for her (Thanks to my wonderfully supportive husband).
My fear is that by the time I get back to see her in person it will be too late. I want so badly to pick up the phone and hear her voice on the other end. I have so much to share with her. Its not as easy as I thought it would be becoming the parent to my mother.
Is there anyone here that has dealt with the same situation? How do you help from so far away?
You all are so strong and my prayers go out to all of you.
You never know how strong you are, until being strong is the only choice you have.