Hookah
New member
- Joined
- Mar 24, 2008
- Messages
- 1
- Reason
- Learn about ALS
- Country
- US
- State
- tx
- City
- austin
I am 24 years old and first started noticing persistent twitches about 9 months ago. I had a full neurological workup at the time, including a clean EMG.
A second clean EMG was conducted 2 months after the onset of symptoms and I was diagnosed with BFS. I was very relieved and resolved to get in really good shape with my new lease on life. I've added quite a bit of muscle mass and was feeling great.
Since then, my hypochondria has reared its ugly head and has me reading nasty things on the internet.
I have read that ALS can sometimes present with fasciculations for a long time before weakness occurs. I have read on this website that twitching can be the first sign for quite a while.
My fascics seem to be getting worse and more widespread, but I haven't noticed any weakness as of yet.
In your experience, is it worth getting another EMG? I can't seem to find any solid information on the timetable of symptoms and EMG results (yes I have read the stickies but the answers are unclear - I think the disease, like many diseases, works differently in everyone, which only adds to how terrible it is!)
I have read one abstract of a study where a man was eventually diagnosed with ALS after having only fascics for about a year, but this seems that it might only be part of the statistical certainty that some people with true BFS will eventually "get" ALS as well.
Sorry for yet another twitching question. I just want to know if I need to keep pursuing this.
One other question: Do both ALS and BFS twitches cease when the particular muscle is flexed? Mine always stop when I am actually using the muscle. I haven't read about any discrepancy between bad and good twitches, so I might just be barking up the wrong tree on this one.
Sincere thanks in advance to anyone who selflessly takes the time to reply.
A second clean EMG was conducted 2 months after the onset of symptoms and I was diagnosed with BFS. I was very relieved and resolved to get in really good shape with my new lease on life. I've added quite a bit of muscle mass and was feeling great.
Since then, my hypochondria has reared its ugly head and has me reading nasty things on the internet.
I have read that ALS can sometimes present with fasciculations for a long time before weakness occurs. I have read on this website that twitching can be the first sign for quite a while.
My fascics seem to be getting worse and more widespread, but I haven't noticed any weakness as of yet.
In your experience, is it worth getting another EMG? I can't seem to find any solid information on the timetable of symptoms and EMG results (yes I have read the stickies but the answers are unclear - I think the disease, like many diseases, works differently in everyone, which only adds to how terrible it is!)
I have read one abstract of a study where a man was eventually diagnosed with ALS after having only fascics for about a year, but this seems that it might only be part of the statistical certainty that some people with true BFS will eventually "get" ALS as well.
Sorry for yet another twitching question. I just want to know if I need to keep pursuing this.
One other question: Do both ALS and BFS twitches cease when the particular muscle is flexed? Mine always stop when I am actually using the muscle. I haven't read about any discrepancy between bad and good twitches, so I might just be barking up the wrong tree on this one.
Sincere thanks in advance to anyone who selflessly takes the time to reply.