pinky
New member
- Joined
- Oct 16, 2014
- Messages
- 8
- Reason
- CALS
- Diagnosis
- 07/2013
- Country
- US
- State
- CA
- City
- San Francisco
After six years of PALS' ventilator care, my energy is flagging. My PALS will be 79 in November. He had respirator onset diagnosed in July 2013 and required a ventilator to continue in this life 10 weeks later. During that time he has lost the used of his limbs almost completely, rejected eye gaze for communication, retains facial expressions and a little motion in his left wrist. He can still sit when placed in his power chair and properly secured. In spite of all, he is in good spirits. My spirits and energy are another matter. I work out twice a week, get out with friends and try to keep my spirits up. Our family has been very kind, but I see their spirits tiring. Some days I wonder how one person can claim the energy of so many people? and, of course, claim so many resources? I remind myself that life is precious, but this is a hard road.