Daddyrabit
New member
- Joined
- Oct 6, 2013
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 09/2013
- Country
- US
- State
- Ga
- City
- Richmond Hill
After months of tests to determine the cause of extreme fatigue, muscle cramps and other symptoms. It was originally thought that my problems were caused by a small tumor on an adrenal gland. All of that checked out OK. I was sent to a neurologist that specialized in neruo muscular issues. After a physical exam, he told me that he thought I had ALS, and I would get a complete neurological work up to eliminate other possibilities. It is clear that he believes this is ALS.
That sure rocked my world! My thought at the time was just how I was going to tell my wife of 33yrs. That was a week ago, and I still have not had the courage to tell her, other than to say, "they are going to do more tests." My wife and I are very close. She has always refused to talk about the possibility of my death, will not even consider keeping up with our finances it order to be prepared.
I think I can handle this, at least I am not afraid to die, but the path to that point with ALS sure is scary.
My biggest concern is how and when to tell my wife. Should I wait until it progresses and let her have peace as long as I can? I need someone with experience in this to help me decide.
Thanks
That sure rocked my world! My thought at the time was just how I was going to tell my wife of 33yrs. That was a week ago, and I still have not had the courage to tell her, other than to say, "they are going to do more tests." My wife and I are very close. She has always refused to talk about the possibility of my death, will not even consider keeping up with our finances it order to be prepared.
I think I can handle this, at least I am not afraid to die, but the path to that point with ALS sure is scary.
My biggest concern is how and when to tell my wife. Should I wait until it progresses and let her have peace as long as I can? I need someone with experience in this to help me decide.
Thanks