LeprechaunSean
Distinguished member
- Joined
- Sep 27, 2012
- Messages
- 131
- Reason
- PALS
- Diagnosis
- 01/2011
- Country
- CA
- State
- British Columbia
- City
- Vancouver
I have been going through an ALS diagnosis for over a year now. 6 months ago I was classified as 'possible' ALS (stage 1) and after a follow up last thursday with my neurologist which included my fourth EMG I was shocked to hear him tell me that I was now going to be classified as 'probable' ALS, which according to him is means I'm 90% diagnosed with ALS (as in 90% of people classified as 'probable' eventually are diagnosed as 'definite'.)
The reason I was shocked was because I have not felt any changes whatsoever in the last six months, my legs feel fine, my left arm feels fine. The only symptom I have other than my right arm issues is bodywide twitching, which I have had since last summer. He seems to have based this decision soley on the EMG that was done. So I'm just wondering if there are any hard numbers, statistics, etc, showing the accuracy of EMG's. Any help is much appreciated.
The reason I was shocked was because I have not felt any changes whatsoever in the last six months, my legs feel fine, my left arm feels fine. The only symptom I have other than my right arm issues is bodywide twitching, which I have had since last summer. He seems to have based this decision soley on the EMG that was done. So I'm just wondering if there are any hard numbers, statistics, etc, showing the accuracy of EMG's. Any help is much appreciated.