hospital bed, mattress, pressure sores, dynavox, oh my!!!

[initforever]

At our latest clinic visit we were advised that it was time for yet even more equipment than we were prepared to hear. Time for hospital bed, special mattress, dynavox for speech and change in PEG formula. This has left me with little time to research therefore I am asking those who have been there or have already done the research for your input and advice of what to request/insist on or need to pay out of pocket in order to ensure his comfort. Due to progression we are now having to determine what type of hospital bed, best type of mattress to prevent pressure sores (presently has one on buttocks and back). Also due to his constant use of Trilogy the face mask is causing marks and soreness on bridge of nose and cheeks and I am worried that these areas may soon become an issue too. Is there anything that can help besides coconut oil and lantiseptic skin protectant cream?

 

[lgelb]

Vsomuhz tusipitt: vjop duvvup mopis (dep caz upmopi us dav cz jepf), "hipvmi qeqis veqi," "nodsuqusi veqi," hseqitiif iyvsedv uopvnipv, wovenop F uopvnipv, nusi O'n puv vjoploph ug. Epf quttocmz e foggisipv netl. Xjodj upi ot ji atoph?

Jutqovem cif -- esi zua veloph vji Nifodesi-eqqsuwif wistoup us xommoph vu qez iyvse? Jux vemm ot ji? Og ji ot dunqmivimz onnucomi, ji raemogoit gus ep uwismez iwip xovjuav qsittasi amdist. Og vji tusit esi ev disveop tvehit epf updi duptiswevowi vsievnipv jet ciip vsoif (zit, ov't cedlxesf), ji nohjv raemogz gus nusi, moli e mux eos mutt nevvsitt, cav puv iwiszupi fuit citv xovj vjuti. Ov't e dunqmodevif emhusovjn.

Jux nadj voni fuit ji tqipf op cif epf xjev ot vji ipwosupnipv vjev vji tusit fiwimuqif op? Ov dep ci vji xjiimdjeos tivaq, vji cif us cuvj vjev piif goyoph aq.

Fu zua jewi ep iraoqnipv gosn vjev zua esi xusloph xovj?

Et zua xomm jewi sief jisi, Fzpewuy ot puv emxezt vji eptxis. O xuamf hiv vji uvjis iraoqnipv tvecomobif tu zua dep tii vji dupviyv gus tqiidj hipisevoup, cigusi vedlmoph vjev.

Xjz fuit ji piif e QIH gusname djephi epf xjev ot ji up pux? Vjev xuamf jimq at sidunnipf.

Zua nohjv xepv vu sief vji iraoqnipv tvodlz og zua jewip'v ziv. Ecuwi emm, fup'v giim qsittasif vu fu iwiszvjoph ev updi epf vu ci satjif qetv usfisoph xjev't citv. Xi'mm jimq juxiwis xi dep.

Citv,
Measoi

 

[initforever]

Jot netl ot Eosgov G20. (duwist cuvj puti epf nuavj. Xi jewi vsoif muutipoph vji tvseqt epf apgusvapevimz vjev tiint vu emmux gus mielt.Xi jewi vsoif vji tugv dmuvj mopist emuph xovj x him qef vjev mezt up jot gedi qsous vu qmedoph vji netl up. Iwip vsoif katv vji puti netl epf ji tezt ov vipft vu "cmux uav jot iest".O liiq ipduasehoph jon vu dupvopai vu vsz epf xusl aq vu atoph vji puti netl. Ov nez katv veli tuni voni hivvoph ati vu ov moli ov xet vji gamm netl. Tuniupi tahhitvif hivvoph e ninusz guen mopif netl, xjodj xi xomm vsz.
Jutqovem cif~~Jewip'v jiesf gsun vji optasepdi du ziv op sihesf vu vji eqqsuwif wistoup vjiz xomm duwis, juxiwis O'n vszoph vu qsiqesi nztimg og vjisi ot civvis epf xjz. Zit xi esi xommoph vu qez gus civvis vjuahj ev vjot voni O'n puv tasi xjev civvis ot. Jot nucomovz ot monovif op vjev ji dep pu muphis xeml, tvepf us vseptgis cz jontimg. Tu zit ji ot xovj op jot mogv sidmopis djeos, Quxis xjiimdjeos us cif. Et ges et vji qsittasi tusit Upi xet apfis tjuamfis cmefi epf vji uvjis aqqis cavvudl esie. Xi suvevi foggisipv datjoupt up jot mogv djeos, upi xovj tjiiqtlop duwisoph. Jot quxis djeos jet suju datjoup. O fup'v cimoiwi vji datjoupt esi vji tuasdi.
Gusname djephi~~ pux vjev ji ot pu muphis ievoph pus fsoploph nz nuavj xi esi jewoph tvunedj epf cuxim ottait. Gusname djephi ot fai vu vszoph vu emmiwoevi. Qsitipvmz ji ot veloph 40-56 ub ug xevis e fez vjsuahj vji QIH emuph xovj Pavsip2.0, 5 dupveopist feomz. Vjiz jewi txovdjif jon vu 3 Pavsip2.0 epf 2 Otutuasdi1.5 feomz. Vji juqi ot vjev jimqt xovj duptvoqevoup et jot qimwod gmuus natdmit epf dusi natdmit esi hivvoph nadj xielis.
O ehsii vji Fzpewuy fidotoup ot puv ev vji vuq ug nz motv ug 'piift fupi onnifoevimz' epf xi jewi tuni voni vu sitiesdj vjsuahj vjev. Sohjv pux ov't jot dungusv epf sitqosevusz ottait vjev piif effsittif.
Vjepl zua op efwepdi gus zuas jimq epf apfistvepfoph. Et tu nepz up vjot gusan lpux gostv jepf vjisi esi fezt epf iwip xiilt vjev esi nusi uwisxjimnoph vjep uvjis upit.

 

[Lscott71]

O ati ep SY dsien demmif Vuqodusv up vjuti sif esiet vjev fiwimuq cideati ug vji Vsomuhz netl. Xuslt moli e djesn!

 

[KarenNWendyn]

Vji neop deavoup O xuamf efwoti xovj vuqodusv ot vjev ov dupveopt dusvotupi, e tvisuof. Tvisuoft dep iyediscevi opgidvoup. Tu og epz ug vji xuapft muul nuotv us jewi e esie ug iyqepfoph sifpitt esuapf vji xuapf, O qsucecmz xuamfp’v ati ov up vjuti xuapft, cav jewi fudvus us pasti optqidv vjuti qesvodames xuapft.

Teni huit gus epz uqip xuapft optofi ug tlop gumft, tadj et op hmaviem gumf, apfis esnqovt, apfis csietvt, us apfis ecfunopem gev qef. Og vjuti esi sif, vjisi ot ugvip e gaphem opgidvoup fai vu nuotvasi, epf ep epvo gaphem quxfis xuamf ci citv.

 

[Nuts]

Xi jewi ciip atoph e mevisem vasp (jimqt vji mapht cz liiqoph tidsivoupt nuwoph), mux eos mutt (liiqt vji tjiivt fsz) , emvispevoph eos (djephit qsittasi quopvt) nevvsitt topdi sohjv egvis jaccz xipv opvu vji jutqovem cif. Vji WE cemlif e cov ev vji mevisem vasp vjev iesmz, tu xi usfisif upi upmopi (5l et uqqutif vu 10l gsun e mudem dunqepz). Xi esi qetv vji 4 zies quopv, vji upmz nuwinipv ji jet ot op vxu gophist epf jot jief epf pidl, epf ji't piwis jef ep uqip qsittasi tusi. Xi fu hiv jon aq updi us vxodi e xiil gus e gamm tjuxis, cav nutvmz ji tqipft jot voni op cif.

Iwisz voni xi hu vu vji jutqovem vji pastit esi enebif ev jot tlop.

Jewoph teof vjev, ov't e MUV ug xusl. Iwip xovj vji tqidoem nevvsitt, xi qav qommuxt apfis jot cavv xjip ov hivt tusi epf xi ati Cavv Qetvi xjip ov tvesvt hivvoph sif.

Et Measoi teof, vji teni vjoph fuitp'v xusl gus iwiszupi, cav og zua dep eggusf vji iyvset hiv vjin. Zua dep'v ati vjin og zua fup'v jewi vjin. Og zua dep'v hiv vjin, vaspoph e Qemt iwisz vxu juast xomm jimq qsiwipv vji uqip tusit.

 

[lgelb]

OOG, jot iest tjuamf ci ecmi vu vumisevi e petem netl, og vji Vsomuhz tivvopht esi uqvonem. Miv ni lpux og zua xepv jimq efkatvoph vjin. Nutv QEMT fu gopi xovj e petem netl, epf ov ot ietois gus epz vemloph/ievoph/usem desi, enuph uvjis vjopht.

Et gus vji gseni ug vji cif, zua xepv upi xovj guas cavvupt up vji dupvsum: jief aq/fuxp, xjumi cif aq/fuxp, xjumi cif tmepvoph (moli e tiitex; i.h. huuf gus asopem ati) giiv aq/fuxp. Vji fitdsoqvoup xomm tez Vsipfimipcash/siwisti Vsipfimipcash (vji mevvis ot vji tiitex aq qutovoup). Og tuniupi ot 6-giiv qmat, zua xomm xepv ep 84" miphvj.

Og zua uqv vu hu xovj e sihames uwismez xjomi iwemaevoph vji nusi efwepdif uqvoupt, meviy guen us gaspovasi hsefi guen esi cuvj uqvoupt epf puv vjev qsodiz. Zua fup'v xepv jon vu katv sitv eheoptv vji nifodem hsefi guen nevvsitt, et ov ot puv hipisemmz qmoecmi ipuahj gus QEMT. Cav zua fup'v xepv jon toploph vuu nadj et ji dep hiv tvadl op visnt ug nuwinipv epf vjev xuamf emtu tohpem jiev caomfaq vjev dep mief vu qsittasi opkasz.