- Sep 21, 2022
- Loved one DX
Sister diagnosed with bulbar ALS Dec 2021. Somehow is under hospice care. Has feeding tube. So far excess mucus (has suction machine), some choking and wobbly walking (uses walker). Hospice pays for all meds, food, weekly nurse visit, social worker and minister if required. Only takes riluzole, no other ALS med. Hospice is reluctant to prescribe meds that prolong her life and I'm wondering if some of the meds could at least temporarily help with her symptoms, like nuedexta. She's in Texas. The question is should she really be under hospice care? Would she receive better treatment at ALS Clinic at Texas Neurology?