hospice thinks I'm getting better!

Status
Not open for further replies.

azgirl

Senior member
Joined
Jan 20, 2014
Messages
956
Reason
PALS
Diagnosis
12/2013
Country
US
State
AZ
Hahaha. I will be the first cured

evidently someone in the office doesn't understand als. The nurse had to come out and convince them I'm still dying. Maybe I'm costing them too much .
 

MToole

Active member
Joined
Apr 16, 2016
Messages
38
Reason
PALS
Diagnosis
02/2012
Country
US
State
IL
Sweet, I always enjoy getting the when are you going to get better question
 

KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
2,877
Reason
PALS
Diagnosis
07/2017
Country
US
State
OR
They really don’t get it, do they?
 

nona

Forum Supporter
Distinguished member
Joined
Oct 1, 2018
Messages
207
Reason
PALS
Diagnosis
02/2015
Country
US
State
NH
you aced hospice!
 

azgirl

Senior member
Joined
Jan 20, 2014
Messages
956
Reason
PALS
Diagnosis
12/2013
Country
US
State
AZ
they actually pointed out the three als patients they took in after me have all died. If I didn't like their nurse, c na , and rt so much I would change hospice.
 

wishmobbing

Senior member
Joined
Dec 5, 2017
Messages
727
Reason
Lost a loved one
Diagnosis
07/2017
Country
DE
State
Germany
You go girl and educate! Joke's on them.
 

notBrad

Senior member
Joined
Feb 26, 2015
Messages
609
Reason
PALS
Diagnosis
04/2015
Country
US
State
OR
You could always see if you qualify for Medicaid. You have to run down all of your suppliers which we prefer because they are much more concerned about my supplies than home health and hospice.
 

azgirl

Senior member
Joined
Jan 20, 2014
Messages
956
Reason
PALS
Diagnosis
12/2013
Country
US
State
AZ
no complaints about supplies. They are very timely with med and rt supplies. Now nice to have them make all phone calls
 

affected

Guru status reached
Joined
Apr 26, 2013
Messages
11,981
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
home
You have to hand it to em eh - fancy you are still alive so that must mean you getting better ... mmmm love you Kay!
 

KimT

Forum Supporter
Extremely helpful member
Joined
Nov 18, 2014
Messages
3,525
Reason
PALS
Diagnosis
08/2015
Country
US
State
South
Kay, Did you give them a copy of the ALS Awareness document? I give it to every provider I allow to touch me. If they refuse to read it, report them. For people who have just been diagnosed, I'm attaching the document.

You might want to tell your hospice workers that 75% of the people with ALS who contributed to this document in 2016 are dead.
 

Attachments

codyclan

Distinguished member
Joined
Jan 26, 2014
Messages
389
Reason
Lost a loved one
Diagnosis
02/2014
Country
US
State
VA
When my husband was in hospice, a nurse told us that as things progressed and he got closer to the end he may want to get up and we could let him walk around a bit——😳
 

azgirl

Senior member
Joined
Jan 20, 2014
Messages
956
Reason
PALS
Diagnosis
12/2013
Country
US
State
AZ
When my husband was in hospice, a nurse told us that as things progressed and he got closer to the end he may want to get up and we could let him walk around a bit——😳
and while he was walking around, how about sipping some fine wine and enjoying a three course meal! great idea nurse!
 

affected

Guru status reached
Joined
Apr 26, 2013
Messages
11,981
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
home
When my husband was in hospice, a nurse told us that as things progressed and he got closer to the end he may want to get up and we could let him walk around a bit——😳
If we had a competition for the stupidest things said by a health professional, I believe that is the winner :rolleyes::sneaky::rolleyes: just wow
 
Status
Not open for further replies.
Top