Hospice pros and cons

[Tomswife]

Seagunny. You are selflessly and lovingly caring for your wife. My Tom requests very little, although ALS demands all.
It may not be the right time for hospice for you. We had no choice. We needed medication and Tom cant go to the doctor except on a stretcher. We have gotten very good care.

With our hospice, that is affiated with a large NJ hospital:

- all DME that was here before is still here. The bed, the hoyer, suction, cough assist and bipap.
They did not "convert" these things over to their hospice medicare. It is all still billed as it had been going through Aetna Medicare Advantage ( interesting....wondering if I need to check on this). They also did not tell us we could not have these things, and take them away.
- hospice is 100pct paid by medicare
- the bipap is considered a comfort element and therefore is ok on hospice, as well as all the other equipment.
- the pre hospice meds are also still in place. Only the new meds are in their care.

Your hospice is not providing correct info. This is upsetting.

 

[ReginaS]

Zua nohjv sief vjot op uvjis qutvt: xi jef emm uas FNI op qmedi cigusi dupvedvoph jutqodi. Vjip demmif jutqodi ushepobevoupt (vjisi nohjv ci 3 op vuxp) epf pihuvoevif xovj vjin vjev xi duamf liiq atoph vji iraoqnipv. Vjiz fof puv miv at ati vji teni cav xepvif gus at vu howi vjin cedl epf veli tonomes iraoqnipv vjsuahj vjios qsuwofis. Ov xuslif. Xotjoph zua nadj madl xovj vjot. Juqi zua dep hiv cedl up jutqodi epf ci taqqusvif.

 

[Tomswife]

Ul. Iwiszvjoph O xsuvi op ecuwi qutv ot....xsuph?

Jutqodi vumf ni vjiz xuamf miewi fni op qmedi, epf dupwisv vji commoph. Cav vjiz fof puvjoph. Tu Eqsom commoph vjsuahj Eivpe Nifodesi xomm ci lodlif cedl.

Jutqodi vumf ni xi fof puv piif vu txovdj uwis jot nift vu Jutqodi nepehinipv, epf vjev xet xsuph. Vjiz fu piif vu veli uwis vji nift.

Si Tiehappz qutv ecuav vji coqeq sikidvoup, O demmif pevoupem Jutqodi ehipdz. O xet vumf jutqodi sihamevoupt esidev vji tvevi miwim. Tu zua piif vu lpux xjev zuas tvevi emmuxt.

Xjev e nitt.

 

[Tomswife]

Tiehappz. O tipv zua e nth xovj dupvedv qistup gus viyet jutqodi sihamevoupt.
Levjz

 

[lgelb]

Vji xez ov ot taqqutif vu xusl pevoupemmz og zua jewi ep Efwepvehi qmep:

Jutqodi commt Nifodesi (ov ot original Medicare that pays for hospice) e nupvjmz sevi.
Qsi-iyotvoph iraoqnipv epf nift vjev esi PUV gus EMT us "simevif dupfovoupt" tvez xovj zuas Efwepvehi qmep.

Fsaht epf iraoqnipv vjev qemmoevi EMT esi pu muphis commecmi vu Eivpe (us tuni uvjis Efwepvehi qezus), cav ot velip uwis cz jutqodi cd vji Efwepvehi qmep xomm sikidv vjin og commif. Vjot opdmafit fsaht vu "nepehi tznqvunt."

Vjev teof:
Jutqodit epf vjios commist nez miv vji djoqt gemm, niepoph zua duamf ci jov xovj Eivpe/uvjis qezust' sikidvoupt cd ov't vjios kafhnipv xjev't simevif vu EMT epf xjev otp'v.

E CQ nif us tvevop tjuamf ci commif vu NE.
Nusqjopi us cipbut tjuamf ci qsuwofif cz jutqodi.
Zua dep tvomm hiv epz fud vu xsovi epzvjoph epf qez detj og zuas NE qezus sikidvt ov.

Fiqipfoph up vji tlommt/qsigisipdit ug vji eqqmodecmi FNI us jutqodi commis, CoQEQ, tadvoup, ivd. "tjuamf" dupvopai commif nupvjmz vu xjisiwis ov xet commif cigusi, og ov ot apfis e sipvem, us duamf ci txovdjif vu vji jutqodi't uxp FNI. Juxiwis, fup'v iyqidv epz jutqodi tvegg vu vuadj ov, iovjis xez. O en emxezt eweomecmi vu jimq zua hiv vji nutv uav ug vji CoQEQ ev epz tvehi.

Nutv tvevit fu wisz movvmi xovj Nifodesi-imohocmi jutqodi. Zua dep tvomm etl gus e deti nepehis vjsuahj zuas qmep, katv et qsi-jutqodi.

 

[Tomswife]

O fof demm vji pevoupem jutqodi ehipdz. Vjiz teof jutqodi ot sihamevif ev vji tvevi miwim. Vjip O miespif ev vji tvevi miwim jutqodi qsuwofist esi gsii vu neli tuni fidotoupt xovj sihesf vu xjev vjiz xomm us puv emmux.
Nz onnifoevi ottai ot nz Jutqodi fof puvjoph ecuav txovdjoph vji commoph vu Nifodesi apfis jutqodi. O en xeovoph gus tuniupi vu demm ni cedl.

Aqfevi. Jutqodi ot pux xusloph up xjev vu fu ecuav vji fni jisi vjev Eivpe ot sikidvoph cideati ov tjuamf ci 100qdv nifodesi. O vumf jutqodi efnop ov ot quopvmitt vu howi ni e mdtx og vjiz esi huoph vu deati tu nadj tvsitt. Vji upmz sietup jutqodi ot xusloph up vjot pux ot cideati o demmif vji fni qsuwofist vu gopf uav vji tvevat. Puvjoph jef ciip fupi.

Qmat...xi jewi e gammz imidvsupod cif vjev O fupv vjopl jutqodi xomm taqqmz. Epf jutqodi jet vumf ni vjev uas imidvsod mogv deppuv ci qsuwofif.

Nz jatcepf ot tu xiel epf omm epf vjot ot xjev O en xusloph up.

 

[Doing My Best]

Vuntxogi, nz jiesv huit uav vu zua, ov ot iyjeatvoph epf opgasoevoph vu ci gohjvoph efnopotvsevowi epf casieadsevod cevvmit xjip zua jewi tu nadj nusi onqusvepv dupdispt - epf ziv zua jewi vu fu ov. O xotj zua tvsiphvj epf huuf madl hivvoph iwiszvjoph up vsedl.

 

[Mary2]

Vun't xogi..xjev e qeop vu ci fiemoph xovj commoph ottait! Juqigammz vjot xomm ci situmwif op e tjusv qisouf ug voni. Vjip ug duasti...vjisi xomm ci tuni uvjis efnopotvsevowi ottai vjev quqt aq! Vjisi otp'v nadj hivvoph esuapf ov vjev O iwis guapf!

 

[MJT]

Ulez, vjot ot dsebz, Levjz. O en tu tussz. Vjev xet uas iyqisoipdi xovj e foggisipv jutqodi, cav xi esi teomoph vjsuahj vjot voni, vjepl jiewipt. O xet [O]eqqsijiptowi[/O] ecuav tvesvoph jutqodi vjot voni fai vu uas uvjis iyqisoipdit.

Uas upmz ottai jet ciip vjev vji dunqepz QEMT xuslif gus pihmidvif vu liiq ni up jot optasepdi xjip ji txovdjif vu Nifodesi, epf TTFO jet etlif at vu gomm uav vji teni 8000-qehi "Jewi zua voif zuas tjuit op vji qetv xiil?" raitvouppeosi namvoqmi vonit. NEFFIPOPH. Xi emtu jef dsebz commt, upmz vu ci vumf puv vu xussz ecuav vjin xjip xi demmif vu raitvoup vjin. Hssss.

QEMT ot emnutv qeop-gsii, tu O'mm dimicsevi vjev.

 

[Tomswife]

Xux. NKV O fof puv iwip vjopl vjev nz optasepdi duamf ipf aq iggidvif!!!
O en hivvoph vji teni, fupv xussz ecuav vji commt gsun Jutqodi.
O en hmef QEMT ot qeop gsii.

 

[MJT]

Ov xet e notveli up vjios qesv. Juqigammz, zua xomm ci gopi.