CoachMeg
Distinguished member
- Joined
- Mar 4, 2011
- Messages
- 209
- Reason
- Loved one DX
- Diagnosis
- 02/2011
- Country
- US
- State
- CA
- City
- Roseville
I have put off posting because I don't want to make too big of a deal of this. However, it is weighing heavy on my mind and I could use some perspective.
We have been accepted/enrolled/admitted to hospice. Doctor was pretty clear when he gave the referral that he was concerned with my husband's breathing and essentially his diaphragm. I agree that his breathing is my concern. (Of course there is more, but there always is, right?)
I am glad (not really the right word) that he is on hospice. The resources available to all of us are phenomenal. Almost a relief that someone will be checking on him at least once a week.
He doesn't feel the same way. I can't say that I blame him, but it has definitely added to the tension in the house. He doesn't think he is sick enough to need a nurse in the house. I am also working toward taking time off of work. Not that I want to babysit him, but I want to be with him. Holy crap....our time is running out and I just want to BE with him.
Anyway, I am rambling. The novice psychologist in me says he is in denial. All the talking in the world isn't going to change that and I can be ok with that. But what should I do? What can I do? Does any of this make any sense?
I am really struggling.
We have been accepted/enrolled/admitted to hospice. Doctor was pretty clear when he gave the referral that he was concerned with my husband's breathing and essentially his diaphragm. I agree that his breathing is my concern. (Of course there is more, but there always is, right?)
I am glad (not really the right word) that he is on hospice. The resources available to all of us are phenomenal. Almost a relief that someone will be checking on him at least once a week.
He doesn't feel the same way. I can't say that I blame him, but it has definitely added to the tension in the house. He doesn't think he is sick enough to need a nurse in the house. I am also working toward taking time off of work. Not that I want to babysit him, but I want to be with him. Holy crap....our time is running out and I just want to BE with him.
Anyway, I am rambling. The novice psychologist in me says he is in denial. All the talking in the world isn't going to change that and I can be ok with that. But what should I do? What can I do? Does any of this make any sense?
I am really struggling.