- Jan 22, 2011
- Learn about ALS
Hi, I have been struggling with vague but troubling symptoms for 12 years and I know that time frame in itself calls into question the validity of whether what I am experiencing is ALS. I have seen a neurologist in 2004 and had a clear MRI scan. The symptoms I have are heavy legs, that feel wobbly after going upstairs a few times or even just waking up some days they feel like this. My arms too often feel heavy, I can lift them but say holding a hairdryer for a few minutes the aching pain is too much, I m not clumsy at all and I can still do fine motor activities such as thread a needle. I get multiple fasiculations all over my body at rest, I cannot see any muscle wastage at all. I experience Extreme fatigue (which led an Endocrinologist towards a Chronic Fatigue diagnosis in 2013). Constant vertigo symptoms and now more recently more worrying to me I have developed Horner's Syndrome left pupil (CT Scan brain is clear), my neck muscles ache and feel weak, the left side of my face intermittently feels numb and I get a buzzing/tickling sensation in my throat. Muscles across my shoulders also feel weak and ache. GP has referred me back to the neurologist but at the back of my mind is bulbar onset ALS. My main question is has anyone who has a ALS diagnosis started off with Horners Syndrome? Is it at all associated with ALS? Thank You in advance for any input people may have.