LeeTR
New member
- Joined
- Jul 31, 2022
- Messages
- 8
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- DK
- State
- NA
Hello!
My wife, Karin, began undergoing medical tests almost 2 months ago because it was noticed that she occasionally slurred her words. Initially, these included blood tests and an examination of her lung capacity. Then, several weeks ago, she had an MRI scan, requested on the understanding that it would be the first of several tests to either eliminate or confirm Motor Neurone Disease. This written request was sent digitally (something I remain unhappy about, given its psychological impact). Anyway, I’m sure I don’t have to tell anyone here what effect that request had. My wife didn’t really know what MND was, so she was knocked sideways when she began to read about it online. (I previously had scraps of knowledge, based on a few well-known cases.)
The MRI scan seems to have ruled out some possible causes of Karin’s symptoms, such as a stroke or Parkinson’s Disease, but she will have this confirmed at her next appointment with the neurologist. While she awaits the next test - an EMG - her psychological wellbeing is assaulted on a constant basis by stress that will no doubt be familiar to many of you. She needs my support more than ever before. And, that’s why I’m here.
In order to remain strong, while facing the prospect of losing the love of my life within a short period of time, I need to hope for the best while preparing (as best I can) for the worst. To this end, I’m trying to learn everything there is to know about this insidious disease.
Over the course of the next 6 weeks or so, Karin will undergo the necessary tests and interviews that should give us a clearer picture of the situation. During this time I would like to be able to communicate with people who have been through what Karin is going through, so I am better equipped to support her. While she may not, in the end, be diagnosed with MND/ALS, the testing and waiting is almost unbearable.
A little background info, as part of my introduction:
Karin is 54 years old and we have two daughters, (ages 13 & 16). Their nationality is Danish, while mine is British. We also live in Denmark, where I work as a schoolteacher at an international school.
My wife, Karin, began undergoing medical tests almost 2 months ago because it was noticed that she occasionally slurred her words. Initially, these included blood tests and an examination of her lung capacity. Then, several weeks ago, she had an MRI scan, requested on the understanding that it would be the first of several tests to either eliminate or confirm Motor Neurone Disease. This written request was sent digitally (something I remain unhappy about, given its psychological impact). Anyway, I’m sure I don’t have to tell anyone here what effect that request had. My wife didn’t really know what MND was, so she was knocked sideways when she began to read about it online. (I previously had scraps of knowledge, based on a few well-known cases.)
The MRI scan seems to have ruled out some possible causes of Karin’s symptoms, such as a stroke or Parkinson’s Disease, but she will have this confirmed at her next appointment with the neurologist. While she awaits the next test - an EMG - her psychological wellbeing is assaulted on a constant basis by stress that will no doubt be familiar to many of you. She needs my support more than ever before. And, that’s why I’m here.
In order to remain strong, while facing the prospect of losing the love of my life within a short period of time, I need to hope for the best while preparing (as best I can) for the worst. To this end, I’m trying to learn everything there is to know about this insidious disease.
Over the course of the next 6 weeks or so, Karin will undergo the necessary tests and interviews that should give us a clearer picture of the situation. During this time I would like to be able to communicate with people who have been through what Karin is going through, so I am better equipped to support her. While she may not, in the end, be diagnosed with MND/ALS, the testing and waiting is almost unbearable.
A little background info, as part of my introduction:
Karin is 54 years old and we have two daughters, (ages 13 & 16). Their nationality is Danish, while mine is British. We also live in Denmark, where I work as a schoolteacher at an international school.