Hoosier PALS, CALS, etc - Last call for advocacy feedback for ALSA 2008 issues!

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rknt50a

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Joined
Aug 14, 2006
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214
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Lost a loved one
Diagnosis
09/1996
Country
US
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IN
City
IN
If you live in Indiana, please take a moment and fill in the ALSA Advocacy Listening Survey at
www.alsaindiana.org

The deadline has been extended but today (Thursday, Dec. 20) is the last day to submit your thoughts. Thanks for taking a moment and telling ALSA what is important to you for the 2008 advocacy agenda. I'm a volunteer who needs to assemble the results, so all the more Hoosier participants, the better!

Please help spread the word. Thanks! Have a good day, everyone.
 

Beebe

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May 2, 2006
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319
Diagnosis
4/2006
Country
oce
State
new jersey
City
forked river
Hello

Hi there, Received an email today from ALSA Advocasy Congress passed legislation to provide an additional 3 million dollars for the ALS Registry Centers for Disease Treatment and Prevention. The President will sign when they reconvene in January. This a wonderful victory! My Best to all, Beebe
 

CindyM

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Sep 17, 2006
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Learn about ALS
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New England
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Anytown
This is good news. Congrats to all who worked on this project. Cindy
 
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