papaw50
Active member
- Joined
- Jun 19, 2006
- Messages
- 39
- Reason
- PALS
- Country
- US
- State
- West Virginia
- City
- Ravenswood
Hello,
Seeing how we're new at this ALS and not quite understanding fully what to expect, can anyone tell me if hoarseness is part of this awful disease?
My husband was just diagnosis this week so we've not received any literature, etc. yes. We did register with the ALS foundation and the MD foundation - both have mailed us a package.
Up until this week, my husband's symptoms were the weakness in both of his arms & hands, atrophy and the continuous muscle twitching.
But, the last few evenings - he is hoarse and has to clear his throat a lot. Maybe I'm reading more in to it - maybe it's just allergies.
How does one know when a symptom is from the ALS? or just a common cold? I think I'm being a little overprotective?
He has a bike trip scheduled for September - they ride for 3 days, about 10 hours each day. I think it's way too much for him to do but he insists he's not an invalid.
To those caregivers - how do you stop yourself from being too overprotective? I watch every move he makes! When he's attempting to button his shirt, I just want to go over and do it for him...things like that.
any advice?
Well, my friends - another day that the Lord has given us! Taking one day at a time.
Thanks!
Patty
Seeing how we're new at this ALS and not quite understanding fully what to expect, can anyone tell me if hoarseness is part of this awful disease?
My husband was just diagnosis this week so we've not received any literature, etc. yes. We did register with the ALS foundation and the MD foundation - both have mailed us a package.
Up until this week, my husband's symptoms were the weakness in both of his arms & hands, atrophy and the continuous muscle twitching.
But, the last few evenings - he is hoarse and has to clear his throat a lot. Maybe I'm reading more in to it - maybe it's just allergies.
How does one know when a symptom is from the ALS? or just a common cold? I think I'm being a little overprotective?
He has a bike trip scheduled for September - they ride for 3 days, about 10 hours each day. I think it's way too much for him to do but he insists he's not an invalid.
To those caregivers - how do you stop yourself from being too overprotective? I watch every move he makes! When he's attempting to button his shirt, I just want to go over and do it for him...things like that.
any advice?
Well, my friends - another day that the Lord has given us! Taking one day at a time.
Thanks!
Patty