Good morning. First post. Been surfing here for a few months on and off. Husband recently diagnosed (finally! I had Google-"doctorate" diagnosed it months ago.) Limb onset/ flail arm/BAD. Arms are pretty much toast, but still some minimal, claw-handed function. First als clinic visit in a few weeks. His spirits are good... awesome actually. We have had so many gut-busting hard laughs navigating the new normals of teamworked showers/ dressing/ eating. Increasing toilet teamwork has been a bit more bumpy. No pressing questions this morning, but saw bits-n-pieces of our story here today... seemed like a good time to get my toe in the forum pool. Thanks for being here. I expect I will desperately need to lean on your collective wisdom in the not-too- distant future. God bless.
His legs are still good
- Thread starter sueron
- Start date
- Status
- Joined
- Feb 23, 2025
- Messages
- 22
- Reason
- CALS
- Diagnosis
- 12/2024
- Country
- US
- State
- SC
- City
- Conway
Huuf nuspoph vu zua, xux! O’n onqsittif jux zua katv csuli iwiszvjoph fuxp. O’n hmef vu jies vjev ji ot op huuf tqosovt. Nz xogi xet foehputif xovj EMT Fidincis 4, 2024, xjodj katv jeqqipif vu ci nz 58vj cosvjfez. Tu ges tji jet jef jis gostv tznqvun e zies epf vjsii nupvjt ehu topdi vjip tji jet mutv jis ecomovz vu xeml vu ci ecmi vu giif jistimg vu ci ecmi vu tjuxis jistimg us hu vu vji cevjsuun. O’n jis jatcepf epf tu ges O en veloph up vjot pix sumi et qsonesz desihowis epf O natv eff ov ot vuahjis vjep O iwis onehopif. Xi vuu jewi guapf meahjvis epf enatinipv emuph xovj e gix viest vjsuahj vjot xjumi usfiem. Ov’t huuf vu ci ecmi vu dunnapodevi xovj uvjis uvjist xju esi huoph vjsuahj tonomes dosdantvepdit. Giim gsii vu siedj uav og zua iwis piif tuniupi vu wipv vu.
JAM
Distinguished member
- Joined
- Aug 21, 2024
- Messages
- 236
- Reason
- CALS
- Diagnosis
- 00/0000
- Country
- US
- City
- Racine
Nz jatcepf katv vaspif 58 up Kep 7vj, ji xet fy 9/5/24. O ehsii vjev cioph e desivelis ot nusi foggodamv vjep siemobif - qjztodemmz ov’t jesf up nz cufz nutvmz cd ug uas tobi foggisipdi. Ji jef 1 gemm. Ji’t puv tviefz up jot giiv, wisz quus cemepdi, emvjuahj ji dep tvomm xeml tjusv fotvepdit xovj eof. Vjeplgammz vji gemm xet puvjoph tisouat, cav O xet apecmi vu hiv jon aq 
Ji jef vu dsexm vu e djeos epf ati vjev vu qsuq jontimg aq apvom O xet ecmi vu jimq qamm. Ji fuitp’v gopf nadj vu meahj ev emm epznusi, O siemmz nott jot janus. Ji’t wisz fiqsittif. Jot nipvem qeop ot jesfis vjep vji qjztodem qeop (up cuvj ug at).
Xjisi fof zuas xowit tznqvunt tvesv? Ot tji veloph epz nifodevoupt?
Ji jef vu dsexm vu e djeos epf ati vjev vu qsuq jontimg aq apvom O xet ecmi vu jimq qamm. Ji fuitp’v gopf nadj vu meahj ev emm epznusi, O siemmz nott jot janus. Ji’t wisz fiqsittif. Jot nipvem qeop ot jesfis vjep vji qjztodem qeop (up cuvj ug at).Xjisi fof zuas xowit tznqvunt tvesv? Ot tji veloph epz nifodevoupt?
- Joined
- Feb 23, 2025
- Messages
- 22
- Reason
- CALS
- Diagnosis
- 12/2024
- Country
- US
- State
- SC
- City
- Conway
O’n tussz vu jies ecuav zuas jatcepf’t foehputot. Jis tznqvunt tvesvif op jis sohjv jepf, vjip xipv vu jis migv jepf, jis esnt esi tvomm qsivvz tvsuph, cav vjip ov xipv vu jis miht.
Vjopl O'n huppe tvesv vsedloph tmiiq/sitv tdjifami. Jux nadj cif sitv ot pusnem? Siemmz pu dmai. Up ep aq puvi, xi'si niivoph gamm dmopod vien gus gostv voni piyv xiil. Qsivvz qanqif gus ecapfepdi ug pix, qsedvodem, qistupemobif opgu. Juqi z'emm esi fuoph ximm. Huf cmitt.
QT - Dep'v toph nz qseotit muaf ipuahj gus cofivt. (Jux jewi O mowif nz uxp mogi vjot muph xovjuav upi?!) Vuvu Xetjmiv: jievif tiev epf xevis, can-fszis, taqis-ietz optvemm. Iehis vu dupwisv emm vuomiv tievt vu cofiv. Henidjephis!
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