Jennybav
New member
- Joined
- Jan 29, 2013
- Messages
- 3
- Reason
- Loved one DX
- Country
- US
- State
- In
- City
- Fishers
16 minutes ago
My dad has been suffering from ALS the last 2 years. He is now confined to a hospital bed at home. He is on a Trilogy non-invasive ventilator, needs to use his cough assist machine regularly, has to be fed by someone else, and has a catheter so he doesn't have to get up and down so much to use the restroom. He is on hospice, and they are helpful with bathing him and ordering medicine but my mom is in need of additional help in caring for him. I don't live in the same city as they do (they are in Muncie) ,but I am there at least three days a week to help. I have called several home health agencies that service their area, but they are not allowed to handle or turn his machines off and on. So if my mom needs to leave they would not be able to take his machine mask on and off and help him with the cough assist machine. He cannot do it on his own anymore. In addition, I have called several nursing home facilities to see if they will take patients that are on the Triology ventilator 24/7 and the nursing homes in their area do not take ventilator patients, even though it is a non invasive ventilator. Has anyone had to deal with this before? We have plenty of family who visit, but they would not be capable to help get him up and down if he needs to use the restroom. Any suggestions anyone has in home health care agencies that might be able to help or a place that has a pool of private nurses. Thanks in advance for any advice.
My dad has been suffering from ALS the last 2 years. He is now confined to a hospital bed at home. He is on a Trilogy non-invasive ventilator, needs to use his cough assist machine regularly, has to be fed by someone else, and has a catheter so he doesn't have to get up and down so much to use the restroom. He is on hospice, and they are helpful with bathing him and ordering medicine but my mom is in need of additional help in caring for him. I don't live in the same city as they do (they are in Muncie) ,but I am there at least three days a week to help. I have called several home health agencies that service their area, but they are not allowed to handle or turn his machines off and on. So if my mom needs to leave they would not be able to take his machine mask on and off and help him with the cough assist machine. He cannot do it on his own anymore. In addition, I have called several nursing home facilities to see if they will take patients that are on the Triology ventilator 24/7 and the nursing homes in their area do not take ventilator patients, even though it is a non invasive ventilator. Has anyone had to deal with this before? We have plenty of family who visit, but they would not be capable to help get him up and down if he needs to use the restroom. Any suggestions anyone has in home health care agencies that might be able to help or a place that has a pool of private nurses. Thanks in advance for any advice.