Hirayama Disease

[planningguy]

Has anyone heard of Hirayama Disease, or had any experience with it? I came across an article describing it, and other its predominate prevalence in Asia, it causes many ALS type symptoms with the wrist, forearm, and hands.

Apparently it is usually a nonprogressive "benign" motor neuron disease (I know, when I read that in the aritcle I did a double take too). It is thought to be caused by extended neck flexion damaging the cervical anterior horn.

I was kind of hoping with my history of neck trouble that something like this might be a possible for me. Any thoughts?

Robert

 

[planningguy]

Here is a link to the article I read:

http://www.naika.or.jp/im2/43/01/16c.aspx

Robert

 

[awieleba]

Robert,

I love it! Only you could find such an obscure disease! Hey, I have neck problems and hand/wrist/forearm problems. I am going to pick this one for what I have! does twitching go with it? what about the feet?

Take care, I just love your research abilty!

 

[jennibf]

NO idea but....ME, too! I have neck issues! Sign me up under this one if I have to have an MND at all.

I love the word BENIGN!


Glad I am not the only one still trying to find a diagnosis! What else are we supposed to do while we twitch, cramp, try to distract ourselves from twitching, cramping, and aching?

 

[Zaphoon]

Let's all take the cue from Robert and do our own research for obscure "benign" MND's! It sounds like fun! The next one to find one that is "benign" wins a smiley face.

By the way, Hirayama sounds a lot more exotic than PNS.

Anyone else out there for something benign thats also exotic?

Oh, its "nonprogressive", too! You just gotta love that!

Zaphoon

 

[lostinlouisville]

Kim

Benign calf amyotrophy, I don't know, just googled. I WANT A SMILEY

 

[planningguy]

Zaphoon,

I laughed out loud when I read your post. I actually thought of your PNS thread shortly after clicking the "post" button. I was worried people would think I was too snobbish for PNS

I needed a good laugh today. It was a crappy day at work. You guys are great!

Robert

 

[Zaphoon]

Renee,

What?! You want a smiley for THAT?

Okay, under one condition; if you actually had something come up after it was googled!
:twisted:

 

[Zaphoon]

Robert,

I'm in a peculiar mood tonight as evidenced in a posting on tmarino's thread. I'm probably in trouble over that one.

 

[lostinlouisville]

kim

It really does come up, GOOGLE IT, AND GIVE ME MY SMILEY. YOU KNOW HOW COMPETITIVE I AM.LOL

 

[Zaphoon]

Renee,

Say cheese! :-D:-D:-D

 

[Zaphoon]

Renee,

Say cheese! :-D:-D:-D

Sure enough, I googled "Benign Calf Amy.... and, well, you win!:mrgreen:

 

[lostinlouisville]

Thank You

Do you remember who guessed your name first or who is going to win our other little bet? I don't know I just have to win.

Renee

 

[Zaphoon]

My goodness! You are a competitor (but so am I)!

And NO, I sure have forgotten!

 

[awieleba]

ok, what is the calf amy?