soulkatha
Member
- Joined
- Dec 11, 2019
- Messages
- 13
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- US
- State
- WS
- City
- Milwaukee
I hope all of you are staying safe. I have stayed out of the forum but recently my CK result went real high and thought I would ask.
Months back I had posted "long post". Earlier in March I had EMG which was normal. But my twitches and fatigue never improved. In fact it worsened become more frequent and moving other body parts like lips and eyes.
About a month and a half ago I started getting congested. This has progressed into having that loose feeling where the nasal cavity opens in the back of the mouth area. Water and soup tend to go up slightly at times and I am noticing slight nasal sound at times.
Long story short, my neuro asked that I do a vigorous exercise for CK.
So, I walked mostly and very lightly jogged for about 2 miles in 30 mins, did 20 lb dumbbell three sets of 10 repeats, and some light abs.
The CK value was 732 after 36 hours. After 84 hours its value was 7830. They want to perform another round of test again. Apparently, the value should have declined after 72 hours (I did not exercise or do anything in between).
I feel very sore in forearms and it has been a week now since I did those exercise. Should I be concerned about the CK value not falling but climbing instead? I am waiting to hear back from my neuro with the recent test results. I am worried if this could be slow progressing bulbar als that didn't show in the emg?
Thank you!
Months back I had posted "long post". Earlier in March I had EMG which was normal. But my twitches and fatigue never improved. In fact it worsened become more frequent and moving other body parts like lips and eyes.
About a month and a half ago I started getting congested. This has progressed into having that loose feeling where the nasal cavity opens in the back of the mouth area. Water and soup tend to go up slightly at times and I am noticing slight nasal sound at times.
Long story short, my neuro asked that I do a vigorous exercise for CK.
So, I walked mostly and very lightly jogged for about 2 miles in 30 mins, did 20 lb dumbbell three sets of 10 repeats, and some light abs.
The CK value was 732 after 36 hours. After 84 hours its value was 7830. They want to perform another round of test again. Apparently, the value should have declined after 72 hours (I did not exercise or do anything in between).
I feel very sore in forearms and it has been a week now since I did those exercise. Should I be concerned about the CK value not falling but climbing instead? I am waiting to hear back from my neuro with the recent test results. I am worried if this could be slow progressing bulbar als that didn't show in the emg?
Thank you!