I used to be a "semi-pro" triathlete. Was married less than 6 months before my diagnosis. I feel at times that I have ruined my wives life. When I am feeling that way she comes up beside me and tells me that as much as she hates this disease, she would not trade being with me for anything. So I work as hard as I can at controlling what I can. I cant control that my legs, arms, hand, core and breathing muscles no longer function, but I can control my expressions of love to her. I try not to show her my sadness, or anger, but only that she means the world to me.
There are a lot of kids out there with a "healthy" mom, that abuse them, that don't care for them, that don't support them, that seek their own selfish ends rather than their child's best. The choice we have to make is to let this disease define who we are as it takes away our physical abilities or for us to define who we are by using whatever mental and physical strength that we have to love those around us.