pinkmoon11
Member
- Joined
- Mar 25, 2013
- Messages
- 20
- Reason
- PALS
- Diagnosis
- 12/2012
- Country
- US
- State
- IL
- City
- Springfield
Hi! My name is Kathy. In February 2012, while working at AT&T I noticed that my voice would shake when talking on the phone and it seemed I had to put a lot of effort into speaking. In addition, I was choking on liquids. I also had trouble getting up from a sitting position. To make a long story short, I was given the diagnosis in November 2012. And then the 2nd opinion in December..."unequivocally, this is ALS ." Wow! Never in a million years would this healthy,young 61 yr old have thought of that! But having the faith that I do, i know that God does not make mistakes. And that is what gets me through my day.
Currently, i can hardly speak, but i do have an ipad with Verbally that I can use. I use a bipap at night. I now have a walker, but I have fallen two times in the last couple months. I am going to have a feeding tube inserted in about ten days. My legs are so weak. I don't want to make the transition to a wheelchair, but it may be necessary. And.... I cry a lot. This is the most frustrating thing for me. Once i process the other phases, I am okay and deal with it the best I can. BUT, the crying just seems non-stop. Even if something is happy, I cry. I find myself turning down doing things with friends and family because of this. I have started on wellbutrin; but it is too early to see if it will help.
Does anyone else have these huge emotional outbursts? How do you handle it?
Thank you for taking the time to read this. My thoughts go out to all of you who are battling this disease.
God bless!
Kathy
Currently, i can hardly speak, but i do have an ipad with Verbally that I can use. I use a bipap at night. I now have a walker, but I have fallen two times in the last couple months. I am going to have a feeding tube inserted in about ten days. My legs are so weak. I don't want to make the transition to a wheelchair, but it may be necessary. And.... I cry a lot. This is the most frustrating thing for me. Once i process the other phases, I am okay and deal with it the best I can. BUT, the crying just seems non-stop. Even if something is happy, I cry. I find myself turning down doing things with friends and family because of this. I have started on wellbutrin; but it is too early to see if it will help.
Does anyone else have these huge emotional outbursts? How do you handle it?
Thank you for taking the time to read this. My thoughts go out to all of you who are battling this disease.
God bless!
Kathy