Hi everyone I'm new to the forum. My husband Larry had the shingles in 1999 & then in 2001 had started having alot of weakness & fatigue went to the doc who did heart studies all normal then he sent us to a neurologist & without even an exam he was told that he didn't have anything wrong.He wouldn't go back to that doc so he started seeing his family Doc this year in May. Because now he is having muscle twitching & shortness of breath upon minimal exertion. This Doc sent him for mri of the brain,cervical spine, pulmonary function test chest xray blood tests etc. also saw a pulmonary Doc who says neuro muscle so when we went back for followup the doc said he should see a neurologist so we did this one said not neuro muscular go see a psychiatrist for your depression.We fired him on the spot & started seeing a new one ,she ordered mri of thorax,lumbar & did an emg. she said he had some carpal tunnel but everything else was within normal limits.She did not see twitching at that time & said she didn't think ms or als.but wanted us to go to a University for followup but we are able at this time for me to drive into the city so we stared seeing another neuro that specializes in muscle he did a clinical exam & sat there shaking his head the whole time saying I don't like what I'm seeing, muscle atrophy hyperreflexes babinski reflexes muscle twitching in both legs & arms then he said clinicals point to als.we both just sat there crying so 2wks later he did another emg still pretty normal then a muscle biopsy was done & it's normal so now we have another appt.next Thurs. The waiting & guessing is making us both very stressed, Praying for God to not let this be the diagnoses.I really enjoy reading everyones posts you people are a God send it helps to be able to come on here & see that most have a very positive attitude.God Bless all of you.
Sharon
Sharon