- Sep 6, 2007
I've been a member here for a while but have just lurked in the background. I was able to get a lot of answers just reading past posts but now I don't have as much time to sit down and read so I'll just start asking questions! First off, my Dad got is second diagnosis on Feb. 15, 2007. Happy Almost Valentines Day! Not. VD will never be the same to me again. In the last 7 1/2 months, Daddy has went downhill drastically. We have been putting two and two together and finally realized that he has had this monster for about 5 years or so. In February, he was still walking. Today he is wheel chair bound. Actually, I should say that he is bed bound because he is such a big man, (6'6") we can hardly get him in the chair anymore. My brothers and one nephew can but they aren't around much to do it. Anyway, I need to know . . . when it comes time to get him a feeding tube, and that time is pretty much here, where will it be placed and how do we take care of it? Can my brothers put him in his chair without hurting that tube? Will it keep him from getting hungry? I know that he will still be able to eat by mouth as long as he can but he has lost so much weight that it is unreal. What is a cough assist machine? What does a bi-pap machine do? He has one but can't stand the mask over his face. I can understand that because I can't handle my apnea mask either. Help would be appreciated!