Doe
Member
- Joined
- Sep 14, 2020
- Messages
- 11
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- SD
- State
- VG
- City
- Gothenburg
Hello there,
Hope everyone is enjoying their weekend and that you’re doing good despite the weird circumstances we’re all experiencing atm.
A little background about me. Male, scandinavian, in my mid-late 30’s.
I have been struggling to cope with life early on due to ADHD and OCD. Managable through episodes.
Got a huge relapse in my ocd about 6 years ago where I lost around 60 kilos in weight due to not eating or moving except from the sofa to the bed. The lifestyle was really breaking me down to bits since both muscle tissue, fat and circulation was affected really bad. Was living on yoghurt and SSRI more or less. Tingling, burning sensations, spasms in throat, weakness and fatigue, freezing, bad balance, bladder problems etc..you name it. Got it all due to that. Not that strange at all due to the circumstances.
Fast forward to this year: Once Covid-19 started I wanted to boost my immune system due to the situation. I started eating zinc and c-vitamines in my cereals every morning as heard that it might help a bit. An issue was that I had started to eat less now now again due to anxiety regarding the situation, food possibly being contanimated etc. So my diet was very thin. You get the idea.
After a while I noticed that my bladder problem had changed. Instead of having problems to start I now got sudden urge to go otherwise an accident might happen. Also noticed that I got a bit of change in my bowel movements and problems holding in gas. Thought it was stress related. The burning sensations on the back mixed with a chill continued.
The summer comes. By this time we have changed apartment and I feel a bit achy. I get offered a massage and cold laser therapy on the neck, shoulder, back/spine it as I thought it might give a relief. It did, but later on I noticed that my palms and feet were burning. Got another massage and she tries to crack the back, didn’t work out.
When I go to sleep that night I noticed that when I had my hands opened they wanted to shut and when I try to resist they fell ”asleep” and ending up in a cramp.
I try to lower back excercises, the tingling gets worse. I now notice that I have started to have fasiculations as well. Constantly. Especially on my feet and calves. I go to the doctor and they did a simple neurological test where everything was fine since. I lacked b-12 and folic acid. But the issues seems to linger and I can’t hold my fingers in a static position without starting to feel a tension that escalates to the point where it starts to move wether I want or not. The sore point goes from the neck down across the shoulder down all the way to the finger.
I have also noticed that the involuntary movements have escalated in my legs and shoulders. Especially when I am relaxed.
The symtoms get worse when I am trying to sleep. I get jaw spasms and spasms in my tongue, and some sort of sort of dystonic symtoms where I clench my eyes, turn my head fast like tics etc.
I am obviously out of shape. I’ve lacked sleep and have been stressed to the point of a breakdown for months.
I drop things some times too and saliva tend to get stuck in my throat some times and have done so for a while. Without caring or been giving it a deeper thought. I feel weaker in my grip and have terrible memory which got worse after the massage and laser therapy. And my big toes seems to ”click” within, like a nerve gets disrupted or try to reconnect when I don’t move it.
I have always been in good contact with my body which makes me wonder if I possibly devolped muscular dystrophy due to malnutrion and lack of acitivity and now got it evolved to or exacerbated it to ALS due to the zinc supplements, lack of minerals and acids, long usage of medicines, the massage and foremost the laser therapy which helps the muscles heal themselves on a cellular and mithocondrical level. Maybe sounds like a long haul? Any advice or suggestion? What I should test myself for etc..
Having an appointment with my GP next week again btw.
Sorry for the long text, I am a bit confused and desperate to find out what it could be besides people saying stress whenever they can’t find an explanation.
Have a nice weekend and take care.
Thanks in advance.
/D
/D
Hope everyone is enjoying their weekend and that you’re doing good despite the weird circumstances we’re all experiencing atm.
A little background about me. Male, scandinavian, in my mid-late 30’s.
I have been struggling to cope with life early on due to ADHD and OCD. Managable through episodes.
Got a huge relapse in my ocd about 6 years ago where I lost around 60 kilos in weight due to not eating or moving except from the sofa to the bed. The lifestyle was really breaking me down to bits since both muscle tissue, fat and circulation was affected really bad. Was living on yoghurt and SSRI more or less. Tingling, burning sensations, spasms in throat, weakness and fatigue, freezing, bad balance, bladder problems etc..you name it. Got it all due to that. Not that strange at all due to the circumstances.
Fast forward to this year: Once Covid-19 started I wanted to boost my immune system due to the situation. I started eating zinc and c-vitamines in my cereals every morning as heard that it might help a bit. An issue was that I had started to eat less now now again due to anxiety regarding the situation, food possibly being contanimated etc. So my diet was very thin. You get the idea.
After a while I noticed that my bladder problem had changed. Instead of having problems to start I now got sudden urge to go otherwise an accident might happen. Also noticed that I got a bit of change in my bowel movements and problems holding in gas. Thought it was stress related. The burning sensations on the back mixed with a chill continued.
The summer comes. By this time we have changed apartment and I feel a bit achy. I get offered a massage and cold laser therapy on the neck, shoulder, back/spine it as I thought it might give a relief. It did, but later on I noticed that my palms and feet were burning. Got another massage and she tries to crack the back, didn’t work out.
When I go to sleep that night I noticed that when I had my hands opened they wanted to shut and when I try to resist they fell ”asleep” and ending up in a cramp.
I try to lower back excercises, the tingling gets worse. I now notice that I have started to have fasiculations as well. Constantly. Especially on my feet and calves. I go to the doctor and they did a simple neurological test where everything was fine since. I lacked b-12 and folic acid. But the issues seems to linger and I can’t hold my fingers in a static position without starting to feel a tension that escalates to the point where it starts to move wether I want or not. The sore point goes from the neck down across the shoulder down all the way to the finger.
I have also noticed that the involuntary movements have escalated in my legs and shoulders. Especially when I am relaxed.
The symtoms get worse when I am trying to sleep. I get jaw spasms and spasms in my tongue, and some sort of sort of dystonic symtoms where I clench my eyes, turn my head fast like tics etc.
I am obviously out of shape. I’ve lacked sleep and have been stressed to the point of a breakdown for months.
I drop things some times too and saliva tend to get stuck in my throat some times and have done so for a while. Without caring or been giving it a deeper thought. I feel weaker in my grip and have terrible memory which got worse after the massage and laser therapy. And my big toes seems to ”click” within, like a nerve gets disrupted or try to reconnect when I don’t move it.
I have always been in good contact with my body which makes me wonder if I possibly devolped muscular dystrophy due to malnutrion and lack of acitivity and now got it evolved to or exacerbated it to ALS due to the zinc supplements, lack of minerals and acids, long usage of medicines, the massage and foremost the laser therapy which helps the muscles heal themselves on a cellular and mithocondrical level. Maybe sounds like a long haul? Any advice or suggestion? What I should test myself for etc..
Having an appointment with my GP next week again btw.
Sorry for the long text, I am a bit confused and desperate to find out what it could be besides people saying stress whenever they can’t find an explanation.
Have a nice weekend and take care.
Thanks in advance.
/D
/D