Hi there .. This is my first post.

[Mama Cheryl]

Thank you this will help us understand the emg better. You also stated you have lumbar issues and are getting a second mri of that That mri report will help too. I can tell you that your cervical mri shows issues that would likely show on emg in some way

These are from last year. X Ray and MRI of lumbar. Don't know no If it helps.

 

[codyclan]

Cheryl,
Just a comment to please type your response in the box that appears below the last post in he thread. When you hit the reply button, the previous post is quoted in your new post. For some of our members scrolling through that is difficult, especially if they are using eye gaze. So just type your responses in the box below and then hit the ‘post reply’ button.
Thank you.

 

[Mama Cheryl]

I'm so sorry. I do it from my phone. I was wondering why there were so many. Thank you for the Help

 

[Mama Cheryl]

Hello. I should be getting EMG and NCD today via Em and will send. In the meantime I saw the neuromuscular Dr. Yesterday he gave me this. The insidental findings are High frequency discharge which he sees in patient with non ALS. But i don't have cramping and stiffness the way patient that have that . So now he's not ruling AlS out. Also he said he could not find any denervation ( need to see report).
I am assuming that's good? Now he wants me to go to another doctor. Because he doesn't know now what it is and can't diagnose it. Again he is concerned about my hands getting skinny. And the Theanar atrophy. Oh and MRIs I did , did not prove anything else would attribute to symptoms. Any thought before I hopefully get the paperwork? Many thanks!

 

[Nikki J]

No denervation? Excellent. What kind of other doctor? You said this is neuromuscular Specialist ? Please answer when you post the emg

 

[Mama Cheryl]

Hi. I have the results finally.. do you want screen shots as there is a lot. 6 pages with the interpretation and discussion. I will leave out the wave charts unless you want those. Thank you. Oh and Yes he is a Neuromuscular specialist and so is the one I see Monday.

 

[Nikki J]

Screen shots should work. Remember to deidentify each page. We don’t need wave forms but all the charts/ tabes and interpretation/ summary

 

[Mama Cheryl]

Here they are. They don't look good.
Page five has a lot he did not tell me about. # 2,3,4. I had to research myself. I hope there is another explanation. Low frequency on right femoral... Hmmm sciatica? The chronic reinnervation is concerning .. I read about it. Thank you all for checking this out.

 

[Nikki J]

Nothing looks like ALS and apparently nothing on exam looked like it either. All the comments under 3 and 4 you are worried about relate to the ncs. Ncs abnormalities point away from ALS.
chronic denervation is not worrisome and yours is isolated to one area. Als is acute and chronic denervation in widespread areas.

you blacked out a section right after a comment about high arches. It looks like he was considering cmt possibly? though was not sure.

 

[affected]

Fantastic that this doesn't resemble ALS findings either clinically or through the EMG. I hope they can get to bottom of this with you soon and get things fixed up. I hope you are relieved even if you don't have a definite diagnosis yet

 

[Bestfriends14]

No ALS is a wonderful finding!! Finally, finally you can move on from the fear of this disease. I believe this is the 3rd or 4th EMG you have had with the same findings of no ALS. I truly hope this once and for all puts your mind at ease. At last you can happily move on from this forum, seeing as you no longer need to be here. That is truly wonderful news.

Take good care and best of luck to you in the future, Cheryl!!

 

[Mama Cheryl]

Sorry Nikki phone went off. He had a name in there I blacked it out too far. It was peripheral neuropathy of a family member . I was worried about #2 reinnervation . I read it is related to ALS with high frequencies. Thank you Nikki.

 

[Nikki J]

Let us know what this second neuromuscular says

 

[Mama Cheryl]

I have one question. Has anyone seen the high frequency discharges in non als? The Neurologist called me last night about a question I had. Then he and asked me more questions. Some he be already asked. Then again he mentioned the high frequency discharges and having no explanation for them. Thank you and a sorry to bother you.

 

[Nikki J]

Non specific. See here. ALS isn’t even on the list [High frequency discharges as a non-specific EMG activity in adult acid maltase deficiency (author's transl)]. - PubMed - NCBI