LindaB
Member
- Joined
- Mar 19, 2008
- Messages
- 16
- Reason
- CALS
- Diagnosis
- 03/2008
- Country
- US
- State
- Ct
- City
- Milford
Hello to everyone- I am new to this forum and having a hard time. I am a 64 year old woman who lives in Connecticut along the shore in Milford. I have been married to my wonderful husband for seven years. (Second marriage for both).
In November of 2006, I had spinal fusion surgery. The bone protein they put in, spilled out into my system, and I had repair surgery in March 2007. I came out of that surgery slurring my words, and bulbar symptoms progressed from there. I have been dignosed with everything from a stroke to Myasthenia Gravis. Symptoms have progressed with weakness in both legs and foot drop in both feet. I have had muscle twitching in both legs and some slightly in arms. This had been due to taking Mestinon, which I still take. Mestinon is for Myasthenia but it helps me quite a bit with weakness. I never was able to get my gait back after the back surgery. Also, I fell on a cruise ship in September quite badly and fractured my spine. All symptoms have been worse since then.
Last Tuesday, my neurologist changed my DX to ALS from Myasthenia after a second EMG. I am going to Columbia Hospital in NYC next Tuesday for confirmation.
Well, of course, myself and my entire family are in grief and disbelief over the DX. I have been crying for days. I pray constantly for a miracle and for some peace and acceptance.
I live here alone with my husband who is wonderful and caring. He is my angel, and is taking on all the care alone. I know that I will find some solace and friendship here on this forum. I need to know what to expect.
Thanks for listening to my story. I did shorten it quite a bit.
LindaB
In November of 2006, I had spinal fusion surgery. The bone protein they put in, spilled out into my system, and I had repair surgery in March 2007. I came out of that surgery slurring my words, and bulbar symptoms progressed from there. I have been dignosed with everything from a stroke to Myasthenia Gravis. Symptoms have progressed with weakness in both legs and foot drop in both feet. I have had muscle twitching in both legs and some slightly in arms. This had been due to taking Mestinon, which I still take. Mestinon is for Myasthenia but it helps me quite a bit with weakness. I never was able to get my gait back after the back surgery. Also, I fell on a cruise ship in September quite badly and fractured my spine. All symptoms have been worse since then.
Last Tuesday, my neurologist changed my DX to ALS from Myasthenia after a second EMG. I am going to Columbia Hospital in NYC next Tuesday for confirmation.
Well, of course, myself and my entire family are in grief and disbelief over the DX. I have been crying for days. I pray constantly for a miracle and for some peace and acceptance.
I live here alone with my husband who is wonderful and caring. He is my angel, and is taking on all the care alone. I know that I will find some solace and friendship here on this forum. I need to know what to expect.
Thanks for listening to my story. I did shorten it quite a bit.
LindaB