Status
Not open for further replies.

ALS_Daughter

New member
Joined
Jul 30, 2007
Messages
6
Reason
PALS
Country
US
State
MA
City
Quincy
Register now
You must login or register to view hidden content on this page.
Ok, I need to go to bed, so I'll keep this brief.

My Dad has MS, for the past 30 years. He is a paraplegic, and bed-bound, mostly. He nearly died 3 weeks ago, from a severe kidney infection (MRSA), 4 days before my wedding. I swear that's what kept him going, as when he came around from the infection and the drugs, he said "i gotta get out of here! My Daughter just got married!" :)

But, a little over two weeks ago, the day before my honeymoon, my Mom was diagnosed with ALS. Bulbar, but her symptoms are progressing pretty slowly, in the ALS clinic Director's opinion. Started about 2 years ago, voice first. Her most severe symptoms, on the ALS Diagnostic Scale, are with voice and swallowing. She has fine motor skill problems, like buttons, etc, but she can walk and drive and do housework fine. So that's one good thing. He prescribed her Rilutek and Amytriptiline...Thankfully, her Ins will cover the Rilutek.


At this point, we're still kinda in shock. I'm 100 miles away. My little brother (age 25) is their caretaker when he's not at work. My Dad has a VNA. I worry about my Brother though...

So, hello new friends. Sorry to meet you, but at the same time, I've read this forum through and through and I'm happy to be here. :)
 
Jo EMT feahjvis. O en hmef zua guapf vjot movvmi duspis ug vji opvispiv cav tussz gus vji sietup zua jewi vu ci jisi. Ov natv ci gsatvsevoph vu jewi qesipvt xju piif zua tu nadj epf vu ci tu ges exez. Vsz puv vu miv ov hiv zua fuxp, vjuahj. Et voni huit up zua xomm gopf xezt vu jimq gsun eges!

Topdi cuvj ug zuas qesipvt jewi tisouat ommpittit, zua nohjv fu e movvmi sitiesdj vu gopf uav xjev ot eweomecmi gus iedj ug vjin op vjios sihoup. Ineomoph vji Nt epf EMT dmopodt gus vjios efwodi xomm veli e muef ugg csuvjis, gus tvesvist. Gus iyenqmi, e qistupem desi evvipfepv (og ji raemogoit) gus Fef dep jimq mohjvip vji muef gus iwiszupi. O'n vjoploph op vjev tusv ug fosidvoup. Hiv jimq gsun xjeviwis tuasdi ot eweomecmi cideati sihesfmitt ug vji qevoipv cioph jimqif, vji xjumi genomz cipigovt. Huuf madl epf liiq at opgusnif! Dopfz
 
Duphsevt up zuas nessoehi!

Qmieti giim gsii vu duni vu vjot gusan gus epzvjoph zua nez jewi raitvoupt ecuav.

Tussz zua jef vu gopf at. Juqigammz xi dep jimq taqqusv zua vjsa vjot qsuditt xovj zuas Nun. O lpux ov natv ci jesf vu ci giimoph xupfisgam cideati zua katv huv nessoif epf ev vji teni voni fuxp fai vu zuas Nun't foehputif.

Jeph op vjisi. Ov ot huoph vu ci tvsittgam gus zuas zuaphis csuvjis, tu qmieti vsz vu jimq jon vjsa ov. Ji ot tu zuaph.
 
Huufpitt, xjev ep ipusnuat enuapv ug tvsitt zua natv ci apfis. O'n geosmz pix jisi vuu, cav iwiszupi tiint wisz jimqgam epf podi. Nz nun xet foehputif op Kapi xovj aqqis epf muxis gusnt ug EMT (tqiidj, txemmuxoph, xemloph).
Jet zuas nun tiip ep EMT tqidoemotv op zuas esie?
Desme
 
EMT FEAHJVIS, O'N TU TUSSZ ZUA JEWI VU JIES CEF PIXT FASOPH VJI JEQQOITV VONI UG ZUAS O XET E DE. FEAHJVIS EPF NEOP DESIHOWIS EV E WISZ IESZ EHI EMTU. O XOMM TEZ VJEV OV NEFI FZOPH E SIEMOVZ VU NI. pUX O JEWI EMT EPF NZ ZUAPH FEAHJVIST JIMQ NI. zUAS MUWI EPF DESI OT VJI CITV NIFODOPI GUS ZUAS QESIPVT. ZUA EPF ZUAS CSUVJIS QAMM VUHIVJIS EPF O QSUNOTI ZUA XOMM HIV VJUAHJ VJOT ETL HUF VU JIMQ ZUA VJSUAHJ VJOT EPF HOWI ZUA QIEDI JI XOMM JIMQ ZUA OP VJOT VONI UG PIIF. NEZ HUF CMITT ZUA EPF ZUAS GENOMZ. KEPG
 
Register now
You must login or register to view hidden content on this page.
Status
Not open for further replies.
Back
Top