ALS_Daughter
New member
- Joined
- Jul 30, 2007
- Messages
- 6
- Reason
- PALS
- Country
- US
- State
- MA
- City
- Quincy
Ok, I need to go to bed, so I'll keep this brief.
My Dad has MS, for the past 30 years. He is a paraplegic, and bed-bound, mostly. He nearly died 3 weeks ago, from a severe kidney infection (MRSA), 4 days before my wedding. I swear that's what kept him going, as when he came around from the infection and the drugs, he said "i gotta get out of here! My Daughter just got married!"
But, a little over two weeks ago, the day before my honeymoon, my Mom was diagnosed with ALS. Bulbar, but her symptoms are progressing pretty slowly, in the ALS clinic Director's opinion. Started about 2 years ago, voice first. Her most severe symptoms, on the ALS Diagnostic Scale, are with voice and swallowing. She has fine motor skill problems, like buttons, etc, but she can walk and drive and do housework fine. So that's one good thing. He prescribed her Rilutek and Amytriptiline...Thankfully, her Ins will cover the Rilutek.
At this point, we're still kinda in shock. I'm 100 miles away. My little brother (age 25) is their caretaker when he's not at work. My Dad has a VNA. I worry about my Brother though...
So, hello new friends. Sorry to meet you, but at the same time, I've read this forum through and through and I'm happy to be here.
My Dad has MS, for the past 30 years. He is a paraplegic, and bed-bound, mostly. He nearly died 3 weeks ago, from a severe kidney infection (MRSA), 4 days before my wedding. I swear that's what kept him going, as when he came around from the infection and the drugs, he said "i gotta get out of here! My Daughter just got married!"
But, a little over two weeks ago, the day before my honeymoon, my Mom was diagnosed with ALS. Bulbar, but her symptoms are progressing pretty slowly, in the ALS clinic Director's opinion. Started about 2 years ago, voice first. Her most severe symptoms, on the ALS Diagnostic Scale, are with voice and swallowing. She has fine motor skill problems, like buttons, etc, but she can walk and drive and do housework fine. So that's one good thing. He prescribed her Rilutek and Amytriptiline...Thankfully, her Ins will cover the Rilutek.
At this point, we're still kinda in shock. I'm 100 miles away. My little brother (age 25) is their caretaker when he's not at work. My Dad has a VNA. I worry about my Brother though...
So, hello new friends. Sorry to meet you, but at the same time, I've read this forum through and through and I'm happy to be here.
