EliSjo
New member
- Joined
- Feb 24, 2017
- Messages
- 5
- Reason
- PALS
- Diagnosis
- 06/2016
- Country
- SE
- State
- Vastra Gotaland
- City
- Gothenburg
Hi, I'm Elisabeth and I'm not exactly new. I've been lurking this forum for a while now but this is only my third post
As the title says I live in the beautiful west cost city of Gothenburg in thee kingdom of Sweden :smile:
I'm 41 years old and was diagnosed with ALS a little over a year ago, but have been having symptoms since Autumn of 2015. I'm married to Stefan who has been my one and only since 2000, and we have a son, Emil, who will turn 9 in December.
I still work 75% of full time, but mostly from home, not sure for how long I will have the energy to do that but work still gives me a sense of purpose and gives me something to do during the days so I'll keep at it for a while longer.
As for free time I try spending it with family and friends as much as possible. My husband and I love watching tv-series (bingeing really), and I also read a lot (close to 200 books a year).
As for my physical condition I am still fairly mobile, I have a walker to get around at home, and very short distances outside, but also a manual wheelchair to cover longer distances outside (provided someone pushes me.
My hands are getting weaker pretty quickly, this is also where I had the first symptom. But I can still do most things on my own (though I've since long given up on pesky buttons, zippers, hair ties and such )
My speech is crappy and slurred but I only have minor issues swallowing so far.
My only complaint, besides wishing this crappy disease didn't exist in the first place, is the muscle soreness. It drives me a little bit crazy to be in near constant pain.
Anyhow - that's it about me. Hope to get to know some of you better in time!
As the title says I live in the beautiful west cost city of Gothenburg in thee kingdom of Sweden :smile:
I'm 41 years old and was diagnosed with ALS a little over a year ago, but have been having symptoms since Autumn of 2015. I'm married to Stefan who has been my one and only since 2000, and we have a son, Emil, who will turn 9 in December.
I still work 75% of full time, but mostly from home, not sure for how long I will have the energy to do that but work still gives me a sense of purpose and gives me something to do during the days so I'll keep at it for a while longer.
As for free time I try spending it with family and friends as much as possible. My husband and I love watching tv-series (bingeing really), and I also read a lot (close to 200 books a year).
As for my physical condition I am still fairly mobile, I have a walker to get around at home, and very short distances outside, but also a manual wheelchair to cover longer distances outside (provided someone pushes me.
My hands are getting weaker pretty quickly, this is also where I had the first symptom. But I can still do most things on my own (though I've since long given up on pesky buttons, zippers, hair ties and such )
My speech is crappy and slurred but I only have minor issues swallowing so far.
My only complaint, besides wishing this crappy disease didn't exist in the first place, is the muscle soreness. It drives me a little bit crazy to be in near constant pain.
Anyhow - that's it about me. Hope to get to know some of you better in time!