Carol Deboer
Distinguished member
- Joined
- May 7, 2003
- Messages
- 343
Hi Al and Everyone,
I have just spent the last hour or so going over and reading some of the first posts on this forum. Back from 2003. WOW! Those early days with Downtown Johnny, Fisher, TBear, myself and eventually Al. What a comic relief bunch we were. It was, to say the least bittersweet for me. But, you know, I had some really good moments too! ha..I really sounded like I knew what I was doing, although it was hit or miss, a game that all als families play. I read with delight how strong Henry was when I first started posting, and then with sorrow when I felt that I was the only one that wanted to keep this forum going. I was so angry when I had to start answering my own posts, Ha... It all turned around though, and am so happy to see all the new names and stories that are posted continuously. It makes my heart sing.
I know that many of you, and your families are living with this als thing. It is awful, horrible, unkind, relentless, cruel, tiring, frustrating, and scary.
It is also one of the greatest times in your lives. WHAT? Did this crazy lady also say great? I must have your attention now. Listen, your right, it is not the greatest thing, however, you will find out that some of the greatest moments in your lifes will have come from living this adversity of als. Henry and I had some of the best damn laughs that we ever had in our marriage. We also had time to refelct and remember and to plan for the future. We also had time to kiss and hug and say I love you over and over and over and over. Our children saw what true love was between their parents, and that is something that they will carry with them their entire lives. We met so, so many wonderful people. Not just doctors, nurses, therapists, these people became our friends. They opened their hearts to us and helped us out is so many, many ways. I now know how to modify any, every, and probably every situation that will be thrown my way! I found out how strong I am and how strong Henry was, and the people who were with us each and every step of the way.
It has been 2 years now since Henry's passing. He left with me and those who loved him such a legacy. I know that I have not been on the forum much this past year, ( I let Al take over ha..) so many of you will not know who I am or how I started out early on in the game called als forum. For those of you from the old days, Hi and Hugs, I wonder about some of our early friends, how they are doing.
Anyway, I thought I would just stop in to say hello, and to let each and everyone of you know that I pray for you all each and everyday, and if ever, anyone wants to talk or vent please, please feel free to contact me. I may not be of much help, but, I have been there, lived it for 9 years and am happy to say, survived.
STAY STRONG,
Carol D. xo
I have just spent the last hour or so going over and reading some of the first posts on this forum. Back from 2003. WOW! Those early days with Downtown Johnny, Fisher, TBear, myself and eventually Al. What a comic relief bunch we were. It was, to say the least bittersweet for me. But, you know, I had some really good moments too! ha..I really sounded like I knew what I was doing, although it was hit or miss, a game that all als families play. I read with delight how strong Henry was when I first started posting, and then with sorrow when I felt that I was the only one that wanted to keep this forum going. I was so angry when I had to start answering my own posts, Ha... It all turned around though, and am so happy to see all the new names and stories that are posted continuously. It makes my heart sing.
I know that many of you, and your families are living with this als thing. It is awful, horrible, unkind, relentless, cruel, tiring, frustrating, and scary.
It is also one of the greatest times in your lives. WHAT? Did this crazy lady also say great? I must have your attention now. Listen, your right, it is not the greatest thing, however, you will find out that some of the greatest moments in your lifes will have come from living this adversity of als. Henry and I had some of the best damn laughs that we ever had in our marriage. We also had time to refelct and remember and to plan for the future. We also had time to kiss and hug and say I love you over and over and over and over. Our children saw what true love was between their parents, and that is something that they will carry with them their entire lives. We met so, so many wonderful people. Not just doctors, nurses, therapists, these people became our friends. They opened their hearts to us and helped us out is so many, many ways. I now know how to modify any, every, and probably every situation that will be thrown my way! I found out how strong I am and how strong Henry was, and the people who were with us each and every step of the way.
It has been 2 years now since Henry's passing. He left with me and those who loved him such a legacy. I know that I have not been on the forum much this past year, ( I let Al take over ha..) so many of you will not know who I am or how I started out early on in the game called als forum. For those of you from the old days, Hi and Hugs, I wonder about some of our early friends, how they are doing.
Anyway, I thought I would just stop in to say hello, and to let each and everyone of you know that I pray for you all each and everyday, and if ever, anyone wants to talk or vent please, please feel free to contact me. I may not be of much help, but, I have been there, lived it for 9 years and am happy to say, survived.
STAY STRONG,
Carol D. xo