debbieh
New member
- Joined
- Oct 15, 2007
- Messages
- 4
- Reason
- Loved one DX
- Country
- UK
- State
- Middlesex
- City
- Enfield
Sorry if posting in the wrong place, just want to say hello and thanks for all the information provided on this forum.
I am caring for my dad who is 77 and has appeared to have als for only 7 months. He has very little strength left in his legs and it is getting very hard to manouver him. He is also very weak in the left arm but remains strong thankfully on the right. He has no bulbar signs whatsoever currently.
I am worried about being able to maintain his care at home which is my greatest wish. As he is struggling to bear his weight I am considering a hoist but haven't broached the subject yet - my back is painful and I am worried it might give out on me and then I will be no use to him. It just seems like every day brings more challenges and no sign of a way that his suffering will end. He keeps saying he is bewildered that he is under so much strain but that his heart must be so strong, I think he would like it to give out on him. I am worried that he will go on and on until he gets bulbar symptoms.
Anyway that's a little backgound to our situation - hope it's okay to share this much.
Deb
I am caring for my dad who is 77 and has appeared to have als for only 7 months. He has very little strength left in his legs and it is getting very hard to manouver him. He is also very weak in the left arm but remains strong thankfully on the right. He has no bulbar signs whatsoever currently.
I am worried about being able to maintain his care at home which is my greatest wish. As he is struggling to bear his weight I am considering a hoist but haven't broached the subject yet - my back is painful and I am worried it might give out on me and then I will be no use to him. It just seems like every day brings more challenges and no sign of a way that his suffering will end. He keeps saying he is bewildered that he is under so much strain but that his heart must be so strong, I think he would like it to give out on him. I am worried that he will go on and on until he gets bulbar symptoms.
Anyway that's a little backgound to our situation - hope it's okay to share this much.
Deb